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  1. TiredSam

    UK Parliamentary debate today - Thursday 24th January 2019

    And the whole BPS crew praying that Michael Sharpe doesn't go on twitter.
  2. TiredSam

    Open Quality of life study

    This slightly concerns me. ME is often wrongly diagnosed as depression, and one of the ways it can be distinguished from depression is that if you ask a depressed person what they would do if they weren't depressed, they'd struggle to come up with much or find any motivation, whereas an ME...
  3. TiredSam

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    That line is starting to look like a bit of ubiquitous fluff which Drs, therapists and anyone else who reads it skims over on their way to get to the meat of whatever it is they're reading. "Yeah yeah, but where does it say what I actually have to do ...". I certainly glaze over whenever I read...
  4. TiredSam

    UK Parliamentary debate today - Thursday 24th January 2019

    If the SMC put out their usual spin this time, every MP who was in the chamber or watches the debate will clearly see them for what they are. The SMC will probably continue until they are calling everyone else in the world a liar, but the number of people involved and likely to think "Hang on a...
  5. TiredSam

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    At my self-help group we regularly have new members who want to know how to continue to work, how to get better and be able to do more. It's what we all wanted at the beginning. Being confronted by the hard facts of this illness (it's not going to get better and you need to cut down your...
  6. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Yes, I got that. I explained my words in a subsequent post too. Doesn't make any difference if someone decides to take your words and trumpet them about as a distraction.
  7. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Welcome to @TiredSam's time machine, in which we can travel back in time to relive events again and again until we get it right, a bit like groundhog day. Let us set the dials and take a trip back to the evening of January 14th 2019 and see if we can get it right this time. First attempt, here...
  8. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Well thank goodness nobody here used the words "liar" or "fantasist". "Infuriating scumsuckers who really piss me off" might not go down so well though, do be careful @Esther12. EDIT: VES is a member here and can read this thread, yet instead of engaging or collaborating, she just chose to...
  9. TiredSam

    Researchers to study dogs’ emotional attachment to toys

    At least the dogs can't go online and claim the psychs have got it all wrong. The results will be whatever the researchers say they are, and pet owners everywhere will lap it up. There's be a range of "scientifically proven" dogtoys to ensure the emotional stability of your dog in this for someone.
  10. TiredSam

    Researchers to study dogs’ emotional attachment to toys

    Good to see this neglected subject finally receiving the attention it deserves.
  11. TiredSam

    David Tuller: Trial By Error: My Six-Month Review

    @dave30th If you keep going I'll lend you my best T-Shirt
  12. TiredSam

    Evaluating the Effects of Environmental Exposures on Neurological Disorders

    My wife sprayed the garden with roundup the summer before I got ill.
  13. TiredSam

    NICE Annual Conference 2019: "Transforming care"

    I think it might mean that it's time to stop trusting science-fascist experts and start listening to anecdotal evidence from real-world patients. This is not only more respectful to patients' narratives and perspectives and more democratic, it also has the advantage that even if you can't design...
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