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  1. Andy

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Exactly Peter. We've already seen a stated shift in approach from them, which obviously we will need to monitor as best we can, this group has the potential to be a very useful one to pwME in the UK if they can be encouraged onto the right path. Thankfully more helpful engagement is happening...
  2. Andy

    United Kingdom: ME Research UK (MERUK) News

    "ME Research UK is seeking a full-time science writer to make a positive difference in communicating our work at a very exciting time. If your passion is making science and research accessible to a range of audiences, we would love to hear from you.bit.ly/3GHHN5W"
  3. Andy

    Blog: The Science Bit by Brian Hughes

    ME, Long Covid, and the History of Medical Stigma (Transcript) "Here is a transcript of my recent podcast with the Norwegian ME Association. In the interview, we discuss the medical stigma where post-viral illnesses, such as ME and Long COVID, are falsely characterised as ‘psychological’ due to...
  4. Andy

    A prospective follow-up on thyroid function, thyroid autoimmunity and long COVID among 250 COVID-19 survivors 2023 Tak Wai Lui et al

    Abstract Purpose We evaluated the evolution of thyroid function and autoimmunity among COVID-19 survivors over 6 months in relation to interferon beta-1b treatment and long COVID. Methods We included COVID-19 survivors managed in a major COVID-19 centre between July 2020 and May 2021 who were...
  5. Andy

    Renal abscess with Capnocytophaga canimorsus infection from a dog bite 2022 Trainor-Moss et al

    Abstract We present a case of renal abscess caused by Capnocytophaga canimorsus infection in a previously healthy middle-aged man. He presented with sepsis and an acute kidney injury, and although not identified on his initial assessment, he had sustained a dog bite 5 days prior to hospital...
  6. Andy

    United Kingdom: Action for ME (AfME) news

    "There is only 1 week to go before our Breaking Isolation Workshop, funded by...
  7. Andy

    USA: News from the Workwell Foundation.

    From a Workwell email. "The Workwell group welcomes the New Year with new ways to promote hope and provide help for people living with PEM/PESE We are pleased to announce the formation of Workwell Health. The purpose of WWHealth is to elevate the standard of care for people living with post...
  8. Andy

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    Would it? Given that, again, the focus of this study was on the lived experience of women, there seems to me no need to include the lived experience of men. In addition, I believe it is pretty well established that it is women who are overwhelmingly diagnosed with the type of chronic conditions...
  9. Andy

    Compilation of ME articles in 2022

    For reference, here are the previous compilations. Compilation of ME articles in 2021 Compilation of the biggest ME articles in 2020 Compilation of best and/or most read ME articles in 2019
  10. Andy

    RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports.. 2022 Ritelli et al

    Full title: RNA-Seq of Dermal Fibroblasts from Patients with Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders Supports Their Categorization as a Single Entity with Involvement of Extracellular Matrix Degrading and Proinflammatory Pathomechanisms Abstract Hypermobile...
  11. Andy

    “I Just Want to Feel Safe Going to a Doctor”: Experiences of Female Patients with Chronic Conditions in Australia, 2022, Merone (3+ with ME/CFS)

    So you are not confirming your opinion on whether the women interviewed in the study are wrong or not then. Not sure what is so hard to understand here. This paper is about the experiences of women. It is not attempting to discover if the experiences of the women interviewed are also...
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