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Background Gastrointestinal symptoms are common in ME/CFS, but there is a knowledge gap in the literature concerning gastrointestinal motility features and detailed symptom description. Objective In this study, we aimed to characterize gastric motility and gastric symptoms in response to a...

Sure, you know better than me what level of cooperation, interest and support DecodeME has had from the NHS. You do you, I don't have the energy to waste and need to eat.

No, I don't think it is.

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and fibromyalgia (FM) are two chronic complex diseases with overlapping symptoms affecting multiple systems and organs over time. Due to the absence of validated biomarkers and similarity in symptoms, both disorders are...

Thank you for all of your efforts, I and the rest of the team deeply appreciate it. Please note that, when we appeal to the community to do what they can to spread the word about the study, we aren't hoping for people such as yourself to take on board that message, as you obviously are doing...

Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 2 February 2023 1.Main points An estimated 2.0 million people living in private households in the UK (3.0% of the population) were experiencing self-reported long COVID (symptoms continuing for more than four...

KEY POINTS People diagnosed with ME/CFS must manage extreme fatigue, and their experiences have implications for those with long COVID. A challenge of managing an illness like ME/CFS is its invisibility to others, despite its severe impact on a person's ability to function. Ensuring people feel...

Abstract Purpose Craniocervical junction instability in a paediatric population presents a formidable challenge to the neurosurgeon. With a variety of anatomical variations, diminutive bony and ligamentous structures, possible superimposed syndromic abnormalities, the craniocervical junction is...

Trial By Error: My Article About the Life–and Preventable Death–of Maeve Boothby O’Neill "Last week, Codastory.com published an article I wrote about Maeve Boothby O’Neill, a 27-year-old in Exeter, England, who died in October, 2021, from complications of ME. The specific cause appears to have...

From an NIH email. "Plans are underway for an ME/CFS Research Conference to be held in-person at NIH and virtually on December 12-13, 2023, with a Young Investigator Workshop on December 11th. Additional details coming soon! Information about the conference will be shared via this list serv and...

I'm not sure what the highest number of questionnaire responses ever is but I'm certain that 9000 DNA samples already represents the largest ME/CFS genetic data set collected by any research group anywhere. We've been discussing the impact of the questionnaire results on the genetic analysis...

Abstract New clinical observational studies suggest that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a sequela of COVID-19 infection, but whether there is an exact causal relationship between COVID-19 and ME/CFS remains to be verified. To investigate whether infection with...

Meant to say that I didn't attempt an exhaustive search, so there may well be other examples that could be found.

A quick Google search gives these (I have given the forum thread where we have it) Provision of Social Support to Individuals With Chronic Fatigue Syndrome, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3693568/ Impacts of online support groups on quality of life, and perceived anxiety and...

Immunologic prediction of long COVID In addition to the acute phase of SARS-CoV-2 infection, a significant percentage of patients experience a prolonged illness with varying symptomatology. Longitudinal SARS-CoV-2 patient-centric immunologic, inflammatory and metabolic data collection has...

Abstract The biology driving individual patient responses to severe acute respiratory syndrome coronavirus 2 infection remains ill understood. Here, we developed a patient-centric framework leveraging detailed longitudinal phenotyping data and covering a year after disease onset, from 215...

The authors revealing their opinion on whether CFS is FND or not.

Background Acute health events, including infections, can trigger the onset of functional neurological disorder (FND). We hypothesised that a proportion of people with long-COVID might be experiencing functional symptoms. Methods We performed a systematic review of studies containing original...

January's News in Brief thread posted to Reddit. https://www.reddit.com/r/cfs/comments/10qoxr4/the_mecfs_and_related_news_in_brief_posts_for/

Extended to further datasets and clinical cohorts at population scale, this immune repertoire analysis strategy offers a strategy for disease definition refinement and diagnosis, as well as improving understanding of immune response features such as autoreactivity that are shared across...