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This editorial is for the research topic "Infectious and Inflammatory Mechanistic Underpinnings of CFS/ME" in Frontiers in Neurology, other publications in it are (at time of posting) Lessons From Heat Stroke for Understanding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021...

Bit hard for them to know the lessons of the new NICE guideline before the guideline process even got started. And as Trish points out if you actually look at the study there is some value to it.

News in Brief posts for w/c 30th Jan. Facebook: https://www.facebook.com/sci4me/posts/pfbid0kLZpq2tEf4tZ7ZeNi4h723eRLhHZCXFtT8ovZ88Zh7zrPeLiMAQJ9bbYrdQWyfMAl Mastodon: https://med-mastodon.com/@s4me/109812225038505867 and published papers thread Facebook...

From the survey frontpage This survey is intended for those with ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome), Long COVID, and/or COVID vaccine injury. The survey attempts to uncover the most promising medications, supplements and vitamins for treating these conditions. The...

From Australia. Long COVID clinics and patients in limbo after federal funding expires, https://www.theage.com.au/national/long-covid-clinics-and-patients-in-limbo-after-federal-funding-expires-20230130-p5cgez.html __________ Copied to the News from Australia thread

Copied from the Long Covid in the media thread From Australia. Long COVID clinics and patients in limbo after federal funding expires, https://www.theage.com.au/national/long-covid-clinics-and-patients-in-limbo-after-federal-funding-expires-20230130-p5cgez.html

Open access, as part of the digital edition of the book "Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, Diagnosis and Treatment", https://www.mdpi.com/books/book/6613

No, those all are folks in the UK.

Highlights • A panoply of unexplained subjective and autonomic-related symptoms is present in patients with ASIA syndrome. • Small fiber neuropathy is an important clinical manifestation of ASIA. • Newly discovered biomaterials that may act as adjuvant include: polypropylene meshes, Essure...

Following years thread, ME Awareness Day / Week / Month, May 2023

2023 World ME Day campaign announced "The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to understand this disease more accurately. That’s why our tagline this year is “ME...

Highlights • Many patients with COVID-19 present with persistent symptoms after the acute phase. • 10.4% of these patients were considered at risk of Somatic Symptom Disorder (SSD). • Age, sex, and psychotraumatic symptoms were associated with the severity of SSD. • Identification of SSD should...

I think this was rejected as well. Long COVID is not a functional disorder, Svetlana Blitshteyn, Anne Bhereur, Todd Davenport, Nicola Clague-Baker, https://osf.io/h6jmd/

As our participants are required to report a diagnosis of ME/CFS from a health professional, we would only pick up additional patients who, presumably, had two different diagnoses (ME/CFS+another), which from a genetic analysis basis may not be desirable. Certainly an idea to keep in mind...

If a sample is found to be unuseable then we will notify the participant and send out another sample kit to them so that they can submit a replacement sample.

Yes, that is our hope as well. As I understand it, based on previous findings from other GWAS into other conditions, if there is something to be found then 9k gives us a reasonable chance to detect it. However we have aimed for 20k as, based on previous studies, this would give us the best...

Tiny cohort, no control group, these people might have improved to the same level with no immunoglobulin therapy for all we, or the researchers, know.

Letter rejected. Treating Long Covid as a functional disorder contradicts the evidence and is unhelpful to patients. Response to Saunders et al., Vink, van der Zee et al https://osf.io/v8zr2/

Full title: Effectiveness and cost-effectiveness of a personalised self-management intervention for living with long COVID: protocol for the LISTEN randomised controlled trial Abstract Background Individuals living with long COVID experience multiple, interacting and fluctuating symptoms which...

Trial By Error: A Response to Call for “A New Paradigm” for Long Covid in Lancet Respiratory Medicine "Last month, The Lancet Respiratory Medicine published a comment called “A new paradigm is needed to explain long COVID.” Not surprisingly, this “new paradigm” is the same old paradigm that has...