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Thanks. I think he is on the list of potential contacts already, if not I'll ask that he is added.

Abstract The brain is an energy hog, consuming available energy supplies at a rate out of all proportion to its relatively small size. This outsized demand, largely reflecting the unique computational activity of the brain, is met by an ensemble of neurovascular coupling mechanisms that link...

Abstract Background: Patients with persistent physical symptoms presenting in primary care are often affected by multiple symptoms and reduced functioning. The medical and societal costs of these patients are high, and there is a need for new interventions tailored to both the patients and...

Authors include the Edinburgh Paediatric FND Study Group Abstract Aim To report incidence, demographic and clinical characteristics, and symptom outcome of functional neurological disorder (FND) in children. Method Children diagnosed with FND at a regional children's hospital were...

ABSTRACT Long-COVID-19 symptoms are an emerging public health issue. This study sought to investigate demographics, chronic illness, and probable psychiatric diagnoses as correlates for long-COVID-19 in an urban adult sample. Self-report Qualtrics surveys were sent to students across City...

Abstract Historically, COVID-19 emerges as one of the most devastating diseases of humankind, which creates an unmanageable health crisis worldwide. Until now, this disease costs millions of lives and continues to paralyze human civilization's economy and social growth, leaving an enduring...

NIH news release. Article covers both this study and Preprint: Deficient butyrate-producing capacity in the gut microbiome of [ME/CFS] patients is associated with fatigue symptoms, 2021, Guo,Lipkin et al Studies find that microbiome changes may be a signature for ME/CFS "Researchers have found...

Now published Full title:: Multi-‘omics of gut microbiome-host interactions in short- and long-term myalgic encephalomyelitis/chronic fatigue syndrome patients "Highlights Multi-‘omics identified phenotypic, gut microbial, and metabolic biomarkers for ME/CFS Reduced gut microbial diversity...

NIH news release. Article covers both this study and Preprint: Multi-omics of host-microbiome interactions in short- and long-term Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2021, Xiong Studies find that microbiome changes may be a signature for ME/CFS "Researchers have found...

Now published. Full title: Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue symptoms in ME/CFS Highlights ME/CFS patients have substantial gut microbiome dysbiosis Bacterial abundances, functions, SCFAs and species...

I've had tinnitus since the onset of my ME 40-odd years ago. And I get what I call phantom smells occasionally which seem to be associated to periods when I have done more than normal.

This article was included in the most recent newsletter from Raul Krauthausen, a German disability activist, https://us8.campaign-archive.com/?u=ff13c518142950e1da3755149&id=6a1786db36 Thanks to @MSEsperanza for pointing that out.

ME Association: New Test For Long Covid "The Times reports on a diagnostic test from US-based diagnostics company IncellDx which claims to detect Long Covid and can distinguish between this and ME/CFS. The article is behind a paywall but can be accessed from the link below...

Full title: How should communities be meaningfully engaged (if at all) when setting priorities for biomedical research? Perspectives from the biomedical research community Abstract Background There is now rising consensus that community engagement is ethically and scientifically essential for...

Abstract The use of data from smartphones and wearable devices has huge potential for population health research, given the high level of device ownership; the range of novel health-relevant data types available from consumer devices; and the frequency and duration with which data are, or could...

My N=1. How well, or not, I pace myself affects my bowel movements. If I'm pacing reasonably well, avoiding overexertion, then everything is regular and uneventful. If I do too much then almost invariably I will experience a day or two of uncomfortable bloating and constipation, followed by a...

Sadly I'm seeing anti-maskers on Twitter linking to this thread as evidence for their 'argument'.

Yes, masks reduce the risk of spreading COVID, despite a review saying they don’t "The question of whether and to what extent face masks work to prevent respiratory infections such as COVID and influenza has split the scientific community for decades. Although there is strong evidence face...

Article in PosAbility magazine about DecodeME and the impact of PPI on the study. "Conducting research on participants who are often incredibly unwell comes with all kinds of challenges. That’s where Patient and Public Involvement (PPI) comes in. The study has formed an active partnership with...

From an IACFS/ME email. IACFS/ME Public Business Meeting, March 31, 2023, at 2 PM EST (New York City, USA time) Dear IACFS/ME Members and Supporters, Please mark your calendars for March 31, 2023 at 2 PM EST (New York City, USA time) for IACFS/ME's Virtual Business Meeting. Traditionally...