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Abstract There have been numerous iterations of naming convention specified for Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). As health care turns to “big data” analytics to gain insights, the Google Trends database was mined to ascertain worldwide trends of public interest...

A non-member has suggested that this article by Morelli that talks about energy production in the myelin sheath might be of interest, https://researchfeatures.com/wp-content/uploads/2022/07/Alessandro-Maria-Morelli.pdf as well as this paper, Conservation and divergence of myelin proteome and...

Other "myelin" threads. Evidence for aerobic ATP synthesis in isolated myelin vesicles, 2009, Ravera et al Myelin sheath: A new possible role in sleep mechanism, 2011, Morelli et al Myelin sheath and cyanobacterial thylakoids as concentric multilamellar structures with similar bioenergetic...

Published papers thread from w/c 27th Feb Facebook: https://www.facebook.com/sci4me/posts/pfbid032p4UcygmoFSzFbvCED9FRGSpC3TcZdBvmXFD9oNC9V1XAKUSf2DBoyDZKYKqe6KXl Mastodon: https://med-mastodon.com/@s4me/109975673097337341

News in Brief posts for w/c 27th Feb. Facebook: https://www.facebook.com/sci4me/posts/pfbid02z62tGUwnc96jUuAnVGmR7EiYZkUL95Kxxy9JfuNRCys9PTmdsWx5Vyzuh8TrWdwol Mastodon: https://med-mastodon.com/@s4me/109970853506777698

Abstract Introduction Patients with functional neurological disorders (FND) present with weakness, sensory or movement disorder without corresponding brain pathology. The current classificatory systems suggest an inclusionary approach to diagnose FND. Hence, there is a need to systematically...

The next meeting of the All Party Parliamentary Group for ME will include More detail here, UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

"The ME/CFS All Party Parliamentary Group will meet on 21 March 2023. In addition to reconstituting the APPG, the AGM will include: a one year-on review of the implementation of the new NICE guideline including a presentation from Action for M.E. on the results from a Freedom of Information...

Replying to someone else about Buchwald but relevant here.

Abstract Background Skin-restricted lupus is a chronic inflammatory disease associated with high rates of depression and anxiety disorders. Patients without psychiatric disorders can experience anxiety and depressive symptoms at a subclinical level, which could be risk factors for progression...

Abstract Background and Objective The objectives of this study were to investigate health care utilization costs of patients with video-electroencephalography (VEEG)–confirmed functional seizures (FS), determine whether patients who received a satisfactory functional neurologic disorder (FND)...

Thread here, A mixed-methods systematic review of post-viral fatigue interventions: Are there lessons for long Covid?, 2021, Fowler-Davis et al

Twitter thread from one of the authors

Abstract Microbially-derived short-chain fatty acids (SCFAs) in the human gut are tightly coupled to host metabolism, immune regulation, and integrity of the intestinal epithelium. However, the production of SCFAs can vary widely between individuals consuming the same diet, with lower levels...

She is also listed as an author on this Snippets from White P et al. "Eight major errors in the review process and interpretation of the evidence in the NICE guideline [...]" [for ME/CFS]

She is currently listed as a Steering Committee Representative for COFFI, https://www.coffi-collaborative.com/steering-committee, so I would say that she can, and is, more than a bit biopsychosocial.

Email from the NIH ME/CFS Information List. "The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) will sponsor a Scientific Workshop on Post Dialysis Fatigue on May 22-23, 2023. Please visit this URL for more information about the workshop and to register...

"If all forms of cancer were grouped together as one, we'd have no cancer treatments today. The people encouraging combining ME/CFS and LC research are conducting psyops on both communities to stop R&D for both. Please don't be a victim twice. Advocate for separate R&D." And their Twitter bio...

Cochrane trying to be ironic perhaps? "Denounce, deny, deceive. The manipulation playbook of anti-science actors. @PhilippMarkolin writes an engaging article about an issue that is increasingly relevant on social media and in the mainstream media too...

Honestly, I don't feel that it would be right for us, as DecodeME, to ask a particular charity to copy what another charity might have done in terms of promoting us. We are grateful for all the support shown to us in all different forms; I know that the MEA has featured us in their members...