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    Fear conditioning as a pathogenic mechanism in the postural tachycardia syndrome, Norcliffe-Kaufmann et al, 2022

    Patients forced to touch a scalding pot of water exhibited greater anxiety than controls. Therefore, we conclude the resulting first degree burns are merely an extreme behavioral response that can be addressed through bespoke CBT. these logical fallacies don’t pass the laugh test. I don’t...
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    The proliferation of discussions and scholarship on FND always leaves me beyond despondent. It seems like such an inevitable way to subvert recent progress in untethering ME from the BPS model. On one hand, many of those involved in perpetuating FND nonsense were also instrumental in ME...
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    'Disability as identity' - discussion thread

    I don’t know anything about the Spiked author, but I’m fairly certain the other fellow has a sizable following. Either way, disconcerting.
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    'Disability as identity' - discussion thread

    I believe it suggests, in the case of ME, that individuals are frustrated with their unachievable ambitions and rather unimpressive lives. Having failed to garner recognition a legitimate way, they turn to bogus disabilities for attention and meaning
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    Long Covid in the media and social media 2022

    it’s reminiscent of the Spiked article regarding Long Covid. Presenting patients as meandering, sick role seeking, upper middle class whites is a time honored bipartisan trope. In fact it may be the only principle that left and right can recite in unison. Someone, perhaps the always eloquent...
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    'Disability as identity' - discussion thread

    it’s reminiscent of the Spiked article regarding Long Covid. Presenting patients as meandering, sick role seeking, upper middle class whites is a time honored bipartisan trope. In fact it may be the only principle that left and right can recite in unison. Someone, perhaps the always eloquent...
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    Facts and Myths about Chronic Fatigue Syndrome, 2022, Per Fink et al. (Danish Medical Journal article)

    Presumably researchers who associate with patients cured by methods such as the Lightning Process would be considered “independent of the ME community.” It’s just those who entertain the delusions of militant patients who would be barred. The illogic of this is mystifying.
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    A new science of emotion: implications for functional neurological disorder, 2022, Jungilligens, Perez et al

    Dare I ask what constitutes related functional somatic symptoms? Perez seems to publish literature more prolifically than anyone I’ve encountered. “Flooding the zone” is often an effective strategy. Produce so much drivel that it’s impossible to rebut every insipid, pseudo scientific argument...
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    Molecular Mechanisms of Neuroinflammation in ME/CFS and Long COVID to Sustain Disease and Promote Relapses, 2022, Tate et al.

    One of the principle critiques of the biomedical approach to ME, emanating from BPS quarters, is that much of the research constitutes “biobabble.” I believe one of psychiatrists, maybe Santhouse, used this term in a well received book not too long ago. If we can’t decimate papers that eschew...
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    Long Covid in the media and social media 2022

    And according to some prominent physician-pundits, that new condition is… hysteria. I guess I should use FND as that is what they believe will placate the feral patients they encounter.
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    A Longitudinal Study of COVID-19 Sequelae and Immunity: Baseline Findings, 2022, Sneller et al

    One other thing. This paper, coupled with the Brigette Ranque missive surrounding beliefs of having Covid= higher incidence of long Covid, could prove catastrophic for patients. I hate to sound alarmist, but the playing field is decidedly uneven. Patients and their advocates need to produce...
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    A Longitudinal Study of COVID-19 Sequelae and Immunity: Baseline Findings, 2022, Sneller et al

    Gaffney offers condescending pseudo-compassion while his wife seems to derive some sort of less diplomatic pleasure in framing this as hysteria. I believe I saw Gaffney mention that this study opens the door to functional neurological disorder explaining the symptoms, and moreover, using...
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    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    imagine how ghoulish one would have to be to regurgitate BPS talking points in response to this harrowing and courageous segment? Alas, there are several individuals on social media doing just that. It’s exactly why Medicine is so systemically shattered. We need the type of overhaul in this...
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    Article in Verywell: An Overview of Central Sensitivity Syndromes What It Is and Treatment

    How is the designation of ME as a somatoform disorder good news for anyone? How does it signify a change, let alone a positive one, for patients? Who is this author, and how does anything she publishes pass the laugh test?
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    Even if the audience is more favorably predisposed to left wing policies, contempt for ME/CFS is a longstanding point of bipartisan consensus. Again, I don’t see anyone listening in sprinting to the vanguard of ME advocacy. Nor do I see their views permeating any discussions on disease processes...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    Kennedy’s anti-vaccine rhetoric coincides with a general antipathy toward the pandemic response - lockdowns, masks, precautionary measures, etc. Those who gravitate toward such a philosophy would find the notion of Long Covid to be a fatuous creation designed to prolong restrictions and stoke...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    Irrespective of the etiological speculation that occurred during the Kennedy/Johnson podcast, I do believe that some positives emerged. The Kennedy listeners would likely be those who would malign us as malingering, psychosomatic, welfare cheats, etc. He appeared incredibly empathetic and...
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    BPS attempts at psychologizing Long Covid

    I should have proffered a more cogent response initially. I didn’t mean that Gez would spur a revolution in interest from outside, unaffiliated parties. I meant that his endorsement of the trauma narrative would drum up the same antiquated tropes from the usual suspects, and indeed it has...
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    BPS attempts at psychologizing Long Covid

    Predictably, the Medinger trauma narrative is being gleefully cited by a slate of actors, including those with ties to the functional neurological domain. Once this genie gets out of the bottle, it’s impossible to contain. I feel like the only thing that can forestall it is definitive...
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    BPS attempts at psychologizing Long Covid

    Gez recently defended the video and position on the grounds that it’s resonating with a majority of long Covid sufferers. He couldn’t contemplate that his Twitter respondents weren’t: (a) representative of a majority of Long Covid sufferers, and (b) a representative of a cross section of long...
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