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  1. Arnie Pye

    United Kingdom: Oxford Long Covid clinic (includes The Long Covid Self-Help Guide. Practical Ways To Manage Symptoms)

    You can see the names of the contributors to this book (The Long Covid Self-Help Guide) by Using the "Look Inside" option on Amazon, then click on the three lines top left to "Explore contents". You'll find The Contributors section that way. There are 17 of them mentioned with a little bit of...
  2. Arnie Pye

    United Kingdom: Science Media Centre (including Fiona Fox)

    Three ratings with written reviews - and they are all one star. Excellent...
  3. Arnie Pye

    The Chronic Elephant blog by hellytheelephant

    Referring to the pain scales you mention in your blog i.e. marking one's pain from zero to ten, I have noticed an inconsistency in how "10" is described. People could be asked to compare their pain to the worst pain they've ever had or it could be the worst pain they can imagine. These are not...
  4. Arnie Pye

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I can't see any comments on the link at all. (I can read the article though.)
  5. Arnie Pye

    United Kingdom: Science Media Centre (including Fiona Fox)

    One of the things I am tired of hearing about is the idea that BPS people who mention ME are at risk from "militant activists". I have never, ever heard or read of anyone anywhere being arrested, charged and sentenced for threatening or attacking any BPS person. If such a thing had happened the...
  6. Arnie Pye

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    In the summary of recommendations images posted by Andy (Post #99), the steps given in chapter 2 are directly at odds with what the Royal Colleges were saying they were gong to do just a few months ago (which was ignore the new NICE Guidelines, mainly), so it will be interesting to see if they...
  7. Arnie Pye

    United Kingdom: Science Media Centre (including Fiona Fox)

    Throughout my life there have been occasional "panic, panic, panic" stories in the media about the birth control pill being dangerous or deadly. Also, there have been similar stories about treatments for breast cancer. So, I suspect one of those is being referred to, but I'm only guessing.
  8. Arnie Pye

    Excessive Postural Tachycardia and [POTS] in ...: Associations With Distress, Impairment, Health Behaviors, and Medication Recommendations, 2022,Klaas

    Who decides how much postural orthostatic tachycardia is just the right amount, rather than being excessive?
  9. Arnie Pye

    Article in Verywell: An Overview of Central Sensitivity Syndromes What It Is and Treatment

    That article made me feel sick - and very angry.
  10. Arnie Pye

    Prevalence and correlates of alexithymia in older persons with medically (un)explained physical symptoms, 2022, Bos et al

    Whoever created that questionnaire, @Trish , would probably make an excellent prosecuting lawyer. They'll tie you in knots and then it will end up with you admitting to a murder you didn't commit. The sub-text is not exactly hidden is it?
  11. Arnie Pye

    Long Covid in the media and social media 2022

    Just as an addition to my post #364, it has occurred to me that doctors and the government are reaping what they have sowed over the last 30 or 40 years. They decided that not treating people who are sick would save money. In the UK they've spent billions on IAPT and BPS, but it doesn't actually...
  12. Arnie Pye

    In which way could Psychiatry and Psychology help investigate ME/CFS (and what exactly is Neuropsychiatry?)–Discussion Thread

    @hibiscuswahine , I'm sorry if it came across that I was having a go at you personally. I wasn't - I was having a go at not just psychiatry but the medical profession as a whole. Being female, and having been tarred with "the mental health brush" in my teens (I'm now in my 60s) I have found...
  13. Arnie Pye

    Long Covid in the media and social media 2022

    If Long Covid was talked about realistically and honestly by doctors and the government it would send the BPS fraternity into a frenzy, since they believe mentioning an illness they have decided is psychosomatic makes people believe they have it.
  14. Arnie Pye

    I was in pain for years. After I was repeatedly told I just had ‘bad periods’, a giant cyst was found on my ovary. By Holly Bourne. The Times (London)

    There is an organisation called the British Society for Gynaecological Endoscopy They have a list of "Accredited Endometriosis Centres". Are they any good? I have no idea, and have had no experience of them. I found this document describing the kind of things they are supposed to do ...
  15. Arnie Pye

    In which way could Psychiatry and Psychology help investigate ME/CFS (and what exactly is Neuropsychiatry?)–Discussion Thread

    Some people with ME, who can hardly eat or walk or speak have been locked up in psychiatric wards for months or years and bullied relentlessly, been denied help of any kind, been denied pain relief, some patients have had food left out of reach, been told they must get up and walk if they want...
  16. Arnie Pye

    Self-reported Tinnitus and Vertigo or Dizziness in a Cohort of Adult Long COVID Patients, 2022, Degen et al

    I'm baffled by that reference to "self-reported tinnitus" in the title of this paper. Who else could possibly report that I have tinnitus except me? I know when I get my hearing tested that there are always certain points in the test where things get a bit "difficult", and the audiologist told...
  17. Arnie Pye

    Exposure to Repeated Cold Stress Influences Sympathetic and Cardiovascular Responses to Muscle Stretch in Decerebrated Rats, 2022, Hori et al

    Not true, in my experience. Chronic pain causes fatigue, depression and stress. I looked up the meaning of "decerebrated" (although I had correctly guessed it anyway): I wonder why anyone would do this experiment, and what relevance it has to humans.
  18. Arnie Pye

    Memory for forgetting in adults with persistent symptoms following concussion, 2022, Silverberg et al

    I'm struggling to understand just the abstract. What is "the memory for forgetting"? I don't understand this either. Why would any case of concussion end up with enhanced memory of anything? And referring to Functional Cognitive Disorder (which sounds made up to me), there are (probably) many...
  19. Arnie Pye

    Association of adverse childhood experiences with the development of multiple sclerosis, 2022, Eid et al

    Abuse of any kind is very likely to raise cortisol levels. Perhaps that needs to be investigated? High cortisol levels are not harmless.
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