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  1. Arnie Pye

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    I don't really need it, but just in case I need a reminder of why I don't see doctors any more for anything invisible I'm going to bookmark the above quoted reply.
  2. Arnie Pye

    New version of Covid, called NB.1.8.1 or Nimbus, doing the rounds

    Title : A new variant of COVID-19 may be driving up cases in some parts of the world, WHO says Link : https://apnews.com/article/covid-variant-who-285a4e5146aa4a7ccb252e38accd5959 Article dated : 28 May 2025 Title : What to know about the COVID variant that may cause ‘razor blade’ sore...
  3. Arnie Pye

    B12/Folic Acid and D3/K2 Supplementation

    Perhaps you should be tested for Pernicious Anaemia (PA)? Apart from having read that PA testing is unreliable I don't know much about it.
  4. Arnie Pye

    B12/Folic Acid and D3/K2 Supplementation

    Have you tried B vitamins in different formats? For example : Methylfolate instead of folic acid Methylcobalamin instead of cyanocobalamin, hydroxocobalamin, or adenosylcobalamin Pyridoxal-5-Phosphate instead of Pyridoxine Hydrochloride etc...
  5. Arnie Pye

    Lack of fever during acute infections

    Off-topic, but I use metric measurements all of the time with one exception - body temperature. I grew up always using Fahrenheit for body temperature and can't really use anything else. I always use Celsius for the weather.
  6. Arnie Pye

    Are gallbladder problems a common secondary symptom in ME/CFS ?

    A low fat diet is possibly causing your gall bladder problems in the first place. The gall bladder needs to be used or it can block up. And if the body rarely needs to digest fat it can cause problems. Another comment, not related to the gallbladder, is that there are three macronutrients in...
  7. Arnie Pye

    'Three best' questions to ask GP if they ignore you

    One thing I struggled with when I was younger was the parental belief that if there was nothing obvious to see, and the doctor hadn't found anything wrong, then there wasn't anything wrong to find, and the obvious explanation for my problems must be laziness. (My parents were obsessed with what...
  8. Arnie Pye

    Functional Neurological Disorder (FND) - articles, social media and discussion

    I thought this short might be of interest in relation to so-called "functional" seizures : https://www.youtube.com/shorts/sfV9vt01IBE
  9. Arnie Pye

    Coping with heat

    I've read experiences of some people buying "cooling vests" and they work well for some people. There are a few available on Amazon. Another thing that sounds good is cooling blankets for dogs. They can be used to help humans too if put into a bed for sleeping on. I must admit I've never...
  10. Arnie Pye

    Introducing a new specifier for functional somatic disorder: a psychodynamic approach to investigating emotional factors 2025 Maroti et al

    I hate that word "distressing". It conjures up all sorts of pictures of Victorian women fainting and crying, and to me it is demeaning. Physical symptoms lead to distress. It isn't distress that comes out of nowhere that leads to physical symptoms.
  11. Arnie Pye

    Internal tremors and vibrations in long COVID: a cross-sectional study, 2023, Zhou, Iwasaki et al.

    I've had internal tremors. I discovered that they were related to my cortisol level. My cortisol is high, but I have seen other people with low cortisol saying that it gives them tremors too. Edit : I've just realised I've given the same information in two different replies to this thread. My...
  12. Arnie Pye

    Exploring Medical Gaslighting: Efforts to Enhance Communication and Trust in Healthcare, 2025, Shane

    The article is written in such a way that the authors would have readers believe medical gaslighting is rather new. But it has been around for a very, very long time.
  13. Arnie Pye

    Exploring Medical Gaslighting: Efforts to Enhance Communication and Trust in Healthcare, 2025, Shane

    I managed to download the full article from this link : https://www.researchgate.net/publication/389478165_Exploring_Medical_Gaslighting_Efforts_to_Enhance_Communication_and_Trust_in_Healthcare
  14. Arnie Pye

    Still to open [Tucson, Arizona, USA], Efficacy of Maraviroc and Atorvastatin for the Treatment of Subjects With Long COVID

    What logic made the researchers think that they could find another use for statins amongst the hordes of Long Covid sufferers?
  15. Arnie Pye

    E-readers (Kindle, etc.)

    Here's a somewhat shorter link that takes you to the same link :) https://www.ebay.co.uk/itm/394206792926
  16. Arnie Pye

    CBT Watch - blog

    I've never been good at searching the internet archive. I tried to find CBTWatch but only found two pages that I happened to have the complete web address for because I'd bookmarked them. If anyone could find the whole website in the archive it would be helpful.
  17. Arnie Pye

    Massage therapies including Bowen Therapy and myofascial release

    That sounds like a symptom of rhabdomyolysis. I wonder if the kidneys always recover completely after you get this symptom.
  18. Arnie Pye

    Long Covid Symptom Clusters, Correlates and Predictors in a Highly Vaccinated Australian Population in 2023, 2025, Tawfiq+

    Why bother looking into socio-demographic characteristics? It reeks of wanting to blame one particular class of people for their own health problems. And the class to be blamed for their own problems is usually the poor and working class. And what are they going to do if it turns out that the...
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