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The importance of estimating sample sizes is rarely understood by researchers, when planning a study. This paper aims to highlight the centrality of sample size estimations in health research. Examples that help in understanding the basic concepts involved in their calculation are presented...

+1 I think they erroneously think they can fix that simply with a lot of Big Data, but that’s only one piece—and doesn’t fix the process problems that exist at NIH. Also, it will take a long time and there are pressing needs now. Also, big data is only as good as the programmers. More...

Sorry you have all this trouble. I do have pains as bad as my gyna pains, but it was that pain that taught me to manage pain. I have EDS as well as ME. I also get kidney stones. So yeah.

With MRI, the diagnosis is 11%, in this population-based sample: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3143230/ 1-2% is from only checking via surgical methods, which will more rarely occur.

I don't know if I have much company in my demands, but I regularly do this. I talk about accessible housing, housing for those with extremely low income (accessible housing for those with extremely low income), home medical services, physician education, accessible medical care, anything else I...

wow, that's really oudated. Do we not have better/newer prevalence studies? ETA: The Chronicle publication is a review of some earlier publications, including Chicago, Wichita, and Fresno.

IOM Clinician's Guide: Pretty sure 84% was Wichita and 91% was one or more Jason studies. No citations in that one. Checking the big doc... Jason, L., S. Torres-Harding, and M. Njok. 2006b. The face of CFS in the U.S. CFIDS Chronicle 16-21...

https://forums.phoenixrising.me/threads/cdc-roundtable-multisite-study-klimas-attempt-to-reset-me-cfs-very-interesting.61811/ I think she gets GWI funding from DoD and VA? https://cdmrp.army.mil/gwirp/research_highlights/18klimas_highlight...

Journals do love their jargon. It's a known issue in academia that groups are communicating mainly to themselves. I don't have a citation for that right now. I am certain that I once read about a paper where someone purposely wrote a bunch of jargon in sentences that made no sense at all, but...

True. Another option would be making a vague name based on some pathology we think is probably part of the picture (such as immune problems) even if it's not known to be causative. They're not particularly fussed about accurate names or names about the ultimate causation in better recognized...

But what do they do with a marker like CRP, which could be associated to a variety of different sorts of conditions?

They might get an email. https://retracted.net/ Or people may continue to cite it, possibly without even knowing it was retracted. https://qz.com/583497/researchers-keep-citing-these-retracted-papers/

The most highly valued forms of participation were self‐chosen activities that people undertook with a degree of autonomy.... Conversely, the absence of control over the timing or form of participation was experienced as demeaning and disabling.

Experiences of social othering in mainstream contexts punctuated narratives. Everyone had stories of being teased and of experiencing particular community spaces as unwelcoming of, even hostile to, bodily difference.... ... people with disabilities tended to influence each other’s participatory...

By locating community both beyond of the ambit of their ordinary lives and beyond interpersonal intimacy, adult service users’ initial reading of ‘community’ is at odds with the broader, societal understanding of the construct. It also failed to acknowledge a quieter valuing of their disabled...

The less palatable reality for many people with disabilities is that they often take significant psychological and sometimes physical risk being in many mainstream contexts because – as Reid and Bray (1998 Reid, P. and Bray, A. 1998. Real jobs: The perspectives of workers with learning...

Paul Milner & Berni Kelly (2009) Community participation and inclusion: people with disabilities defining their place, Disability & Society, 24:1, 47-62, DOI: 10.1080/09687590802535410 Disability‐related public policy currently emphasises reducing the number of people experiencing exclusion...

I was severe and this was related to an additional problem that had caused additional fluid loss and weight loss (tbh random weight loss is not unusual for me, but this was extreme and correlated to this other problem--but it wasn't the first time for extreme weight loss, either, though probably...

How is it meant to be worked out what value of some finding has clinical interest?

I haven't heard of this method of checking for inflammation previously.