Search results

I wanted to say thank you, @Michiel Tack , for summarizing the comments. And there are some good suggestions there. :trophy@:cookie::cake:

Sports medicine and biology have a lot to say about different kinds of foods and how quick of energy or how sustaining they are. Simple carbs (sugary foods, crisps/chips, crackers, etc.) provide quick glucose. Complex carbs provide stored glucose (carbohydrates are more or less long chains of...

Exactly. That's why it's so easy to do too much. And why it's inutterably silly for anyone to think that we need to be convinced to do more. Likely we're already doing too much, because in order to not do too much, we have to stop before we feel bad (er, feel colossally bad, worse than the...

Just sayin' https://www.smithsonianmag.com/smart-news/pessimists-live-longer-than-optimists-525/

I have now found out that Bose has a feature on their webpage to find a store nearby (or as near as there actually is a store--not especially near to me, but not further than I have to go for a doctor visit if I go the further place)...

Polling healthcare professionals is kind of useless after they have made a point of giving out incorrect information.

What are some things you can eat? Like could you have protein powder? It can be made from milk, soy, peas, brown rice, all sorts of things. The catch is you have to have something to mix it with that would taste okay. Shelf-stable milk? Shelf-stable coconut or soy milk? Some of these powders...

Big surprise (sarcasm) but I thought they also liked being thought of as good people, thus at least lip service to equity. Or at least some excuse like "doesn't affect many people"*. *Not actually an excuse. People are people and there may be other applications for the research.

I would like to know more about the activity part before recommending this to anyone. Anaerobic activity didn't do better than pacing or the relaxation (control) group in the study referenced in these posts (each group recorded some symptoms better and some worse, iirc, but pacing was better...

they seem to have courses for a few more health professionals as well, including home care aides and nurses.

that seems weird to me?

About the other doctors saying it was impossible--my professors always taught me that new advances are usually by graduate students. People to new to "know" what things are impossible. So they find new possibilities. Obviously that could apply to people not actually in school as well, as it...

my best guess is that @Dolphin made a good guess and Dr. Unger is retiring or moving on. If they need to replace a specific person, they might think they need someone to do all the stuff she was doing. Otherwise I can't think of any reason to lump ME and HPV together.

I think it's meant to be? Regardless of lobbying (which is mostly needed for rare and stigmatized diseases--the ones where the bureocratic structure isn't working out right), some data indicates that most NIH spending can be correlated to: (individuals affected) + (degree of morbidity and...

From an agency in charge of equitable funding, the normal response to seeing any group struggling badly should be to try to figure out what is not working right and make a change. That this is not occuring is concerning.

I withdrew my post because I decided it was not necessary to address a part of the conversation which was not relevant to whether hEDS is a genuine disease or not.

One thing that non-geneticists may forget is variation in gene expression, which may explain people with low-level (including non-clinical) symptoms. Alternatively there could be other genes that influence other types of joint laxity, or the variant categories might not be fixed correctly (if...

Again: https://rarediseases.info.nih.gov/diseases/2081/hypermobile-ehlers-danlos-syndrome

I understand that there are some issues with testing for Lyme, but I have never heard anyone else claim the effects could be delayed as long as 20 years. The usual thing I hear said is that it takes some weeks or a couple of months to show up. Maybe I am missing something, however.

Or are they just named differently now? post-SARS, post H1N1, etc. And not getting diagnosed.