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oh sorry, durable medical equipment, but yes it would include disability items like a shower transfer bench (a very awkard item and the problem of getting over the tub rim ought to be solved in a different way, imo), wheelchairs of all types, grab bars, and so on. It doesn't include items that...

https://www.ncbi.nlm.nih.gov/pubmed/22648858 Cancer. 2012 Dec 1;118(23):5929-36. doi: 10.1002/cncr.27612. Epub 2012 May 30. Chronic fatigue syndrome and subsequent risk of cancer among elderly US adults. Chang CM1, Warren JL, Engels EA. Division of Cancer Epidemiology and Genetics, National...

There are studies that say this but the conclusions were not generalizable as far as percentages. (Because the recruitment was not representative.) So it could plausibly indicate what kinds of problems we're having, but cannot indicate the probability of getting them...

I don't require my doctor to be trying experimental treatments in order to be "effective." I require that They have some understanding that I'm very ill even if they haven't got a useful clinical test to show this yet. They keep a watch out for problems other than ME and run tests or offer...

I agree that it's good to have a system that captures information about what we can actually do both physically and metally (not so much how we feel, which is important to quality of life but doesn't make useful assessments). And I also think it's more reasonable to ask about the past week, or...

Depends how well your enzymes and so on are working, and depends how many nutrients are in the soil that grew the food.

There's debate whether the biggest problem with being overweight is yo-yo weight from going on weight loss campaigns repeatedly to try to achieve a weight that the bodies of many people who are overweight cannot sustain long-term. Kaiser Health News likes the correlation between weight and...

That part is true, but I haven't seen any evidence that SPECT is currently considered reliable. This I think is a lot of why. We now have better techniques. I don't know if they've used that particular marker, but here's an abstract of an overview mentioning a different marker that is being...

Yes, certainly there's more work to do. I just am pleased to note that we've made a tangible beginning. And we're getting more people to help. Harvard and other places are onboard. That should help with the textbooks, eventually. The current situation is unlikely to last forever, and stuff...

These guys might want to look up "Abuse of Authority" and see if anything there sounds familiar or looks out of their own mirror.

I have been hearing from people I see (even physical therapists and occupational therapists) that they're aware that GET is useless because the big trial had overlapping entry and outcomes criteria (And other, difficulties, but this is the one most recently remarked upon to me). They're also...

I don't know how it is in UK, but in the US most neuros don't rush to diagnose with FND or psychosomatic or so on. I find most will fire me pretty fast after test results come back ("good news; you don't have MS [you're healthy or you should go to rheumatology]"... "people like you tend to...

Yes, that’s reasonable coming from people who suspect anxiety as a cause. But when they’re people who are talking about acid-base balance, they would know the hyperventilation would be a physiological mechanism. It’s a type of respiratory compensation for metabolic causes of acidosis...

Ah sorry. Acronyms. Centers for Medicare and Medicaid Services. The government agency in charge of US Medicare (healthcare for old and/or disabled people, especially hospital and clinic based services but including "home health" which is skilled nursing care usually after a hospital visit...

I found the text on the website (bolding in original) It was also in the photo but probably easier to use the website version. I can find addresses by myself. All is good. (I do wonder though, I heard reports that CDC had removed the wording "hidden health crisis", and I can't find it on...

As far as flulike symptoms, I always thought that was most intended to describe the infectious disease meaning of “malaise:” the sort of sick and weak feeling that accompanies some infections. Nonetheless, I can get body aches, shortness of breath, and cough. Other people describe nasal...

Hi, I just wanted to mention a small thing with your terminology. There are different levels of housebound, just like there are different ways of using wheelchairs (can’t transfer without assistance/device, can transfer but not walk, ambulatory wheelchair user, etc.) Disability is not a binary...

Numbness of the face could have a lot of causes, including multiple sclerosis, Bell's palsy, fibromuscular dysplasia, neurofibromatosis, and other causes. Bell's palsy (one-sided facial weakness) is reported in ME as well as Lyme disease. Numbness of the face is reported in CCI. (information...

I fill out a long questionnaire asking about symptoms and diagnoses (many of which are unrelated to that specific specialty) at almost any specialist I visit. Generally they're offended that I have ticked 80% or so of the available symptoms, but none of the major diagnoses (as they typically...

I got postcards with no directions and no addresses included, but after reading this I will scour my inbox and see if I missed something.