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  1. W

    WHO ME/CFS coding - April to May 2018

    That was a lie. http://apps.who.int/classifications/icd10/browse/2008/en#!/F48.0 G93.3 has always been an exclusionary diagnosis to how neurasthenia is used in the modern era. It is not an alternative diagnosis. It is mutually exclusive.
  2. W

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    at what point does their institution care? or the funder? or any person who doesn't have a friend/family with The Disease?
  3. W

    ADHD Drugs for Chronic Fatigue Syndrome - How Well Do They Work?

    thank you @zzz for the link to the table. That was very helpful. Deleted message where I hadn't read enough of the study.
  4. W

    ME Association - Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes - 21 April 2018

    I can’t work out how nobody can stop such a horrible excuse for science that will clearly harm many patients.
  5. W

    Effects of anti-inflammatory drugs on the expression of tryptophan-metabolism genes by human macrophages, 2018, Freeman et al

    Would it be fair to say that depression is a symptom that means a variety of things, some of which are experienced by healthy people, some of which may be secondary to various other conditions, and one or more which is a disease in its own right?
  6. W

    Does anybody know this?

    There’s some talk of finding sleep waves during wakefulness in our brains (and waking waves during sleep), but I don’t know whether this has been replicated in large studies. Likely not. Might be a guess as to why a doctor doing EEG would ask that in particular, though.
  7. W

    Online ME Quiz content help

    Sorry, easy mistake to make whether it was a misconception you wanted to clear up or one you wanted to assert. I should have asked instead of guessing.
  8. W

    Online ME Quiz content help

    Good idea. One thing, though. You can’t/shouldn’t give blood. https://www.donateblood.com.au/faq/chronic-fatigue-syndrome http://me-pedia.org/wiki/Blood_donation https://www.redcrossblood.org/content/redcrossblood/en/donate-blood/how-to-donate/eligibility-requirements.html “You must be in good...
  9. W

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    more on angiotensin, etc, which I'm getting more and more interested in: https://www2.highlands.edu/academics/divisions/scipe/biology/faculty/harnden/2122/notes/fluelect.htm
  10. W

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    +1 (Though I do things better after eating a small meal and when the temperature is moderate) There are some problems with the U.S. system, but doctors very seldom make money from prescribing medication (they write a script and fax it to a pharmacy of the patient’s choice, which is usually a...
  11. W

    Orthostatic Intolerance in PwME (POTS?/NMH?) - discussion thread

    Informally this is known as “head rush,” but formally it’s called OI. http://www.wisegeekhealth.com/what-is-a-head-rush.htm
  12. W

    Tinnitus poll: Do you experience it?

    I had tinnitus intermittently for a long time, possibly forever. It became constant at some point and has been pretty annoying since the vancomycin (an antibiotic for C. diff.), but as that saved my life, I won’t complain too much. As I had tinnitus previously to the antibiotic, I still voted...
  13. W

    Pharmacological activation of AMPK and glucose uptake in cultured human skeletal muscle cells from patients with ME/CFS (2018) Newton et al

    That's exactly why I think the argument that doctors should already have a test for everything important is extremely silly and ignorant. Because metabolism is extraordinarily complex, and even all the complicated stuff that's known is not all of it yet.
  14. W

    Is this the mechanism underlying PEM?

    didn't mean to derail the thread, though. I do think immune stuff is probably related to PEM, just I didn't take a immunology and find it hard to learn new stuff at this point in time, so difficult for me to discuss in detail.
  15. W

    Leonard Jason wants ME/CFS patients to do a PEM survey

    I forgot to say in the notes an aspect of PEM that I experience is emotional upset. Chiefly depression, but other emotions, too.
  16. W

    Leonard Jason wants ME/CFS patients to do a PEM survey

    I agree, a "block" is a silly way to do measurements. Means any number of different distances. I get that people are bad at estimating distances so they wanted to use something familiar, but not everyone lives in a city center, and probably not every city center has similar blocks. Plus, as...
  17. W

    Is this the mechanism underlying PEM?

    In hypovolemic shock, I would expect energy to be on the same triage. I keep looking at shock as a possible part of what's going on in M.E., but not sure all the pathology quite fits. Nonacute shock is recognized in, for example, Denuge fever...
  18. W

    Is this the mechanism underlying PEM?

    That website is partly right and partly wrong. Yes, it takes more energy to put phosphates on than take them off (ATP= adenosine triphosphate, or adenosine with three phosphate atoms; ADP = adenosine diphosphate, just two; and AMP adinosine monophosphate, only one). The bond between two...
  19. W

    NPR: 2018 April 5. Ineffective treatment often prescribed for low back pain.

    Well, except, CBT can only help with coping, including reducing emotional response to pain. There’s no logical way it could help with the pain itself (unless by changing some activity or positioning that was causing pain, but I think that’s usually called biofeedback, except a few strange ones...
  20. W

    AFME decide Geneva is where their #millionsmissing contribution should be

    WHO has always been supportive of ME being coded in G93.3 and being an actual disease with disease pathology and has in fact chided UK when they wanted to code it with the code for neurasthenia. NHS was made to print stickers to put in their handbooks.
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