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People who use the term “wheelchair users” are overwhelmingly disabled people, including people who are visibly disabled. I think this association would help the point you’re trying to get to, not hurt it. People who say “wheelchair-dependent” tend to be people who are chronically ill and new...

How does that get made? A specialty, sub-specialty, or certificate program, or whathaveyou, for ME? We need that. Although we need more stuff for them to know, but even if we started with what we can demonstrate about the disease existing, how to diagnose, and some case histories, and just good...

That’s excellent; many good points. Thank you! I don’t know if you’re still collecting points but here are some items I noticed offhand: It’s not best practice to say “wheelchair-dependent” (also not at all ok to say “wheelchair-bound”). It represents wheelchairs as a burden and a limitation...

That is the most interesting and reasonable explanation I have ever read. Thank you. I have a question. Would that mean an imbalance of hormones, or even an induced imbalance via estrogenic drugs (yes, “the pill,” but especially the much more concentrated and now withdrawn diethlylstilbestrol)...

A pdf of the preprint might be available. Not up to reading the full thing right now but looked interesting and related to stuff that’s been discussed as possibly related to M.E.

Gene activation precedes DNA demethylation in response to infection in human dendritic cells Alain Pacis, Florence Mailhot-Leonard, Ludovic Tailleux, Haley E Randolph, Vania Yotova, Anne Dumaine, Jean-Christophe Grenier, Luis B Barreiro doi: https://doi.org/10.1101/358531 This article is a...

: popcorn:

I saw someone use it again and so found a link. https://threadreaderapp.com/

I believe there’s something called an unroll or thread unroll Twitter app which might help with organizing threads. I see people using it on Twitter, and it seems easy enough but I don’t have a link or anything.

has this occurred? (sorry, I live under a rock, er, under the bedcovers, much of the time and often don't know current happenings)

Does diary have some kind of other meaning in UK? To me it means a private book that some people (usually women--men would generally keep a journal, although women might keep a journal, too) keep about their thoughts, personal record of happenings, and so forth. I have heard it used especially...

I read you reverse, @Alvin . Too brain fogged. I should sign off. Talk to you later. :)

I agree patients should be careful to avoid harassment, but I don't see how this relates to my post (which was about how MS has more power, and we have protected class). Assuming he reads this forum, I was telling him he's wasting his time. Scientist at leading university bullied by disabled...

worth pointing out: This is the legal definition: https://www.citizensadvice.org.uk/law-and-courts/discrimination/what-are-the-different-types-of-discrimination/harassment/ Unless he's calling his PACE ideas a "belief", he doesn't fit into any "protected class" (afaik). On the other hand...

Right now open access is paid for by charging high fees for each article. https://www.chronicle.com/article/What-Open-Access-Publishing/234108 But since peer review isn't doing the job that was advertised anyway, and in an online era it's not clear what value there is in having eleventy-million...

Best as I know, this term was devised by Dr. Leonard Jason specifically for M.E. http://me-pedia.org/wiki/Energy_Envelope_Theory +1 million

I think it makes more sense to complain about people who generalize an entire group of people rather than nitpick about details about particular events. Even the parties who feel like complaining about threats in the media have at various times admitted such activity would be only a very few...

It’s nice the journal is accepting papers with more educated viewpoints, but at what point would they do something like publish an expression of concern? It’s a known problem in science that even when there are later papers moving things forward, earlier erroneous papers continue to get cited...

In an article discussing whether to excercise while ill (generally not; it won’t help, will infect others, and sometimes make you worse, the article advises, but says Mayo Clinic says it’s ok to expose your gym to a head cold—let’s hope there’s no one there with leukemia or on anti rejection...

Hope you find some time to take care of yourself, Suzy. :hug: