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Right. It does concern me that we aren’t having enough people diagnosed with ME or large enough studies for hardly any of these to study subgroups. How can we know what differences might exist until this is checked? Seems like large studies would have a better chance of finding a good...

The background processes of cellular metabolism are called “housekeeping” functions. Most of what occurrs in a cell is thought to be housekeeping. Enzymes cut down on the energy requirements. It does sometimes take more energy to drive a reaction in reverse. Typically, protein kinases cleave a...

A healthy control describes the NIH metabolic chamber which is also being used in the ME study. https://www.vox.com/2018/9/4/17486110/metabolism-diet-fast-weight-loss?

Just a guess, but I think that’s the name of the survey because the CDC manages things that can be prevented/managed by vaccines and isolation procedures, or by behavioral changes. They don’t really do much with other sorts of topics, as best as I can tell.

I get nausea, sore throat, and diarrhea variability with PEM. I don’t vomit unless I am taking flagyl (it was indicated for a non-ME infection). I hadn’t ever connected nausea to talking, but will have to watch and see if it connects. I connect it to standing/walking “too much” for sure.

I didn’t get very far through the paper before my brain zonked out, so couldn’t tell how to evaluate it myself. Am always interested in what critiques of EBM are out there, as something has failed. Need to find the best critiques, of course.

Interesting. Glad you’re mailing them, whoever they are. That’s a small improvement but an odd conclusion as there’s some evidence that it doesn’t help anyone, even ICF. Better to not advertise these at all, IMO.

https://onlinelibrary.wiley.com/doi/pdf/10.1111/jep.13010 Free full text Sietse Wieringa MSc DPhil Student, Scientia Research Fellow1,2 Eivind Engebretsen PhD, Professor1, Kristin Heggen, PhD, Professor1, Trish Greenhalgh PhD, Professor3 In modern philosophy, the concept of truth has been...

UpToDate I think he is newly listed because he’s in the process of revising it. Someone else can likely say more. Hopefully they’ll have removed Gluckman, who seems to be incapable of sifting through the research problems in this area, when the revision is done.

Unsupported assertion (thesis or topic sentence) Arguing from authority/process /tradition Argument from process/authority/tradition Bandwagon/tradition/process/authority Irrelevant. (Also undemonstrated assertion.) Ad hominem It’s all just assuming that processes/traditions work without...

I did have sticky wax buildup in my ears as a small child, and oddly enough my pediatrician told my mother to get liquid stool softener and put that in my ears to bring out the wax (leaving it in a while and then draining it out, turning side to side). It worked. I never heard a diagnosis...

It’s possible this is a cerebrospinal fluid (CSF) leak. Theoretically, they can give you a plug kind of thing to put in your ears to collect the fluid. Then they can test this for a particular protein found only in CSF. https://www.csfleak.info/what-is-a-cerebrospinal-fluid-csf-leak/diagnosis/...

Probably depends which ones. In one study, the ME patients were deemed more fit than their sedentary controls. Other patients are likely deconditioned as a complication. I expect I am at this point.

Oh he invented graded excercise, until people told him that was bad. Then he had invented pacing. It’s all in how you look at it. ETA: actually I feel a little bad for him. His account of the beginning is that a university asked him to write a thing, and, iirc, without any clinical trials...

Are you in the U.S.? Do you qualify for Medicaid? Medicaid offers “longterm care,” which is an aide who will help with bathing, housechores, etc. Medicare offers short-term skilled nursing or PT care, especially just after a hospital discharge. They don’t cover other care if you don’t require a...

This one?

I guess it would be the opposite of “casual” gaming. Oh guess not. It’s a game with some (purported) purpose. Here’s the game they used, description from the paper:

Thanks for explaining

I read some of the studies trying to work out what was going on. Honestly I can’t figure out why the idea of MCS has such a bad rap because it’s well known that people with other diseases like asthma or migraine or seizure disorders often respond poorly to environmental substances, and...

It’s true that we probably do have bigger fish to fry. (It’s a good idea to consider the bigger picture including people with other conditions when doing our stuff so it’s worthwhile to make sure we’re in line with the majority useage. But there’s likely higher impact stuff to work on with CDC...