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We have denounced the idea of such very offensive messages, again and again. So have many ME charities. I don't know what more anyone could expect. (edited for clarity) Further edit: As verbal abuse by other individuals has nothing to do with us, this was really more than could reasonably...

PS, I think the concern originally stems from diagnosing "pre-diabetes" and getting too many mammograms*, and also high blood pressure, and screening for thyroid cancer, but a strong focus on avoiding overdiagnosis probably has an effect on people not getting diagnosed, especially if they don't...

I don't want to hear a single thing about overdiagnosis until they have fixed underdiagnosis, and I am happy to tell them so.

I think this is a valuable approach, if done right. We do need qualitative studies. It's just that a lot of widely used surveys are not appropriate, and won't accomplish your goal. My advice, fwiw: Keep working on this, but refine your project. Make it shorter so more people can participate...

Maybe every quarter of very large countries

I ping them from time to time, but maybe if more people do it would help

It’s good to have hard data on those two items. On the original study, I would also wonder about confounding. Did whatever led to the depression also cause the reduction in activity? I am not sure they’ve actually proved causation. Post hoc ergo proper hoc (after this therefore because of...

That's good to know. It was high for about 2-3 years, iirc, but I don't know that it was amazingly high. It might have been early on in being ill, so inflammation could have been a good cause.

Am afraid I cannot help troubleshoot causes. But something similar happens to me if I walk too much. I sometimes begin to drag one of my legs. If I'm stubborn and keep walking, they both begin to drag. I get other random gait changes if I walk to much (looks like I am trying to walk like a...

Will this lead to a published review article, I wonder?

https://www.vox.com/future-perfect/2019/1/18/18183939/science-funding-grant-lotteries-research Excerpt: Our current grant review process doesn’t select the best proposals, by a long shot. One study found very little correlation between how a grant was scored and whether the research it produced...

You're right, I said mention when I ought to have said quote. I can't vocabulary anymore. :/

That might be a good reason to donate; help him get an editor maybe.

Not sure why you are @ mentioning me with that. My idea is for Congress to increase the NIH budget overall with some amount dedicated to ME (and it would be good for some to go to other neglected items, too), so nobody would have to be reduced. I think this is the best US NIH play. No idea if...

This is how it feels to me when I do a lung muscle strength test. I feel like I am blowing out harder as I try to match the volume from the first repetition, but the graph looks worse. They send my doctor the first or very occasionally the second one. They always seem to think I would do a lot...

I had a high ferratin when I was younger. No one said anything. It wasn't high later. I guessed maybe they were taking enough bloods at the time that if it was hematochromatosis, that was enough treatment. Hasn't been checked in a long time. You'd think iron tests would be pretty standard...

It would be good if we had a way to generate press coverage ourselves. I think this has been looked at, and some have actually sent out press releases. But is it possible to do more to get press coverage of the things we want covered? I keep thinking I should write articles myself and try to...

That's kind of unfair. I have a family member who worked hard at weight control almost their entire adult life (almost because sometimes they were a healthy weight, except lately when after cancer and septicemia they were underweight). I have seen doctors on Twitter say they didn't feel...

So what's the correct rating for the PACE trial? Er, not to ask you to do a whole review on your own in the next 2 minutes... but whether we can downgrade it by 2 levels?

I knew he and Crick had stolen Rosalind Franklin's research photos to do their DNA work (she died early likely from her work in making them, and so wasn't considered to be eligible for the Nobel prize), but that was so long ago that I hoped things were better now.