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The flossing solutions could help, thanks. Due to ingredients it's really very hard to find any product that I could use, but I am glad you others have things that work for you.

It's well known that people with asthma and migraine are randomly sensitive to odors, foods, and so on, and this is not viewed with suspicion in these disorders. However I am not sure the exact reason is known (especially not for migraine, which is not well studied). I expect in ME there are a...

Most pages have not been archived in over a year, and some have not been archived at all. I was able to add/update a few to archive.org, but it might be good to set up a method. Possibly some tech person even knows of a way to automate this.

Some possibilities: http://www.meaction.net/wp-content/uploads/2015/05/Diagnosing-MECFS-March-2018.pdf basically anything by Chu: https://me-pedia.org/wiki/Lily_Chu https://www.nature.com/articles/d41586-017-08965-0...

wrong thread. moved the post

The usual answers for people who can physically get there include quiet rooms to lie down in, nearby rest rooms, an eating area, and so on. I would also suggest a wheelchair service (please be sure the wheelchairs are regular wheelchairs with brakes the user can reach, and not transport chairs...

I believe the reference data may be skewed. Not sure the implications of this.

Reference norms of Activin A and B (etc.) from where they were determined in Citation 8. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4057391/figure/F2/?report=objectonly

Yes, for some reason this is thought to be some major concern that lots of people fake illness and disability. I don't get it. That's a really weird and inaccurate view.

I couldn't find the ICD-11 submission page, but perhaps I just didn't look hard enough. I really want CFS gone, and I gather that's the majority view.

Good catch. I think I am posting on a different thread than the one I meant to. I meant to post where it was being discussed to change the name (the likeable, but probably futile, suggestion of Ramsay disease was made). I would favor any reasonable proposal that discontinued the use of fatigue...

Are they dreaming?

Here's the process for submitting a new proposal, if it comes to that (I understand that Suzy and Mary and others have done this before, and it's generally not well received for no evident reason, but there's no reason why we can't keep trying)...

For some reason I think they are afraid people won't trust them if they say they were wrong. What they don't seem to realize is that people will trust them more if they are honest about what went wrong. Sweeping it under the rug is not the way to gain trust.

is 2016 the last IACFS/ME conference? Should they be due for one, too?

Hasn't the BPS crew been saying this a while now?

Since Crest bought out Tom's of Maine, I am having trouble finding a suitable toothpaste. If I were willing to give up fluoride, I could find one, but I think I need that. My teeth are not very good, partly due to neglect especially dating from when I was consistently too ill to brush or floss...

I would support SEID, ME, or a new placeholder name. I do not support PVFS, CFS, or anything with "fatigue" in it. ME/CFS has served its purpose of notifying HHS of our displeasure with CFS, and has now outlived its usefulness IMO.

Yes, well, not having snooping might be ok for regular people, although because Facebook, it's clearly not needed anymore. But people who get benefits, well, that's a different case and it's necessary to have a lot of snooping, to make sure there's not a lot of benefits cheats. Or to make sure...

There's apparently a move to do away with this. Here's the US one (comment period now ended): https://www.regulations.gov/document?D=HHS-OCR-2018-0028-0001