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One of the kids in a private facebook group.i am in, suffers from.these kinds of seizures. Brother has ME , you can draw your own conclusions as to how " consults" go Be aware, this is a growth area

@MEMarge You have got me there - sience as an all encompassing description I would struggle with. I am not aware of a " scientific advisor" role previously . Previous input has been from various roles - Hazel O' Dowd , Emily Beardall have both contributed - I won't comment on their...

My aunt's low temperature has been tweaked a bit by addressing adrenals and thyroid . Her function is also slowly improving. At one point I did an excel spreadsheet to automatically graph the 3 x daily readings to a weekly overview to let her sister monitor things a bit more easily. If you...

Indeed. Going to online for meetings/ info sharing may also have saved time and promoted accessibility and inclusion . ........ If you want things to happen then it's actually been easier to make them happen.

Sonya has worked hard to turn things around, and is to be applauded. She brings experience to the table as her son has ME. The children's section was AYME , which merged with AfME. Its head was retained as head of children's section and was a major supporter for EC' s research, including...

For children it may depend on who heads up that section. Was previously one of EC' s fans

Favourite PhD here for engineering students. My eldest daughter did a bit of work during her masters (3years ago ) calibrating chemical sensors for a diabetic wristband wearable which a PhD student was working on. Biotech is a big sector here.

Failing upwards seems to be a growth industry

Thread . Brings back memories

Reliable source Nigel Speight I think from an early hours Twitter review when getting heat.

My daughters feet are a colour that you would expect to find a morgue tag on. After walking to loo and back they go from frozen to chillblains , literally feel as though they are on fire, and colour has changed. It may not look the same as COVID, but there may be a similar underlying mechanism

And I thought I was good at creative writing at school......

Lots of kids are asymptomatic, ( school testing in England will be interesting ) Any parent knows full well how good at communicating disease and infections children are - why should COVID be any different.

Do they know Jon Stone?

Bottom of the thread

Not specifically COVID, but interesting article re pathogens enduring. New Ebola cases linked to survivor from 5 years ago. The persistence of pathogens may assume more importance https://www.sciencemag.org/news/2021/03/new-ebola-outbreak-likely-sparked-person-infected-5-years-ago

Only 6 months . Perhaps more interesting long term when recovery hasn't materialised as expected ( the magic 2 years beloved of Bath)

Yep. My sister in law saw it and whaatsapped me re Ritixumab . She was hopeful for my daughter ( and also potential long COVID as her mum and sister are long haulers ) . I had to let her down as gently as I could

Thank you