Yes. My thoughts too. Especially given the quality if recent uk paediatric research papers.
Although most that I know here are now over 16 . I' ll do some prodding...
this may make no sense at all as I am woefully ignorant of exercise chemisty and physiology- but could this be linked to proteomics studies which show that females are more likely to utilise protein as fuel when glycolysis is dodgy and not not fat as males do?
Would this be a more common...
Responses up to 6th June 2020 - summary
Total 831 responses
of which
711 are those diagnosed with ME at any time aged 16 or older
138 are carers/ family
53 are health care professionals who work...
from memory ( so may be wrong as it's currently 4.15am and little sleep ) from plant research L form bacteria have a weird way of combining with proteins and this can be used to develop disease resistance
Sleep deprived thought- if there is a weird protein mechanism does this circle back to...
Muscle cramps are becoming a real issue for my daughter - this is general but eyes , neck and stomach seem to be particularly affected. Her eyes feel permanently strained ( describes as hanging from eye hooks) and gut muscles are so tight that she cannot be physically sick.
Tendons in neck in...
I think there is something potentially useful but it will depend on how this data is inteprerpreted and analysed.
In our experience there are only some symptoms that seem to " count" medically.
It's only on forums like this that symptoms are discussed and you realise how many there are and...
I am not aware of data .
Two of my kids had pvfs after glandular fever : my daughter developed ME, my son didn't.
Both had relatively mild glandular fever
Although more acute, hospitalization lets you rest. It also perhaps encourages those around you to help so aiding recovery.
Non...
I suspect the poor level.of deep sleep noted in ME is part of this.
Deep sleep seems to be when the body's housekeeping functions kick in - liver in particular.
Perhaps this is because with other aspects not in play, there is more energy available to make " housekeeping" happen ?
I did...
You can make " overnight quinoa " using the flakes as you would oats.
Dosnt need cooking and can add whatever flavourings you like.
Simplest recipe I could find
https://thenaturalnutritionist.com.au/overnight-quinoa/
If you can tolerate chia seeds you could add them for a further...
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