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    ME/CFS services in the United Kingdom

    A bit too many social media posts on how this is interpreted for chronic pain. ... Along the lines of being discharged as no room for a " mindfulness nook" in a living room and suggestions of " journalling" as a pain option... I'm sure there must be some clinicians working wonders somewhere...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    my thoughts exactly :(
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    Repair of Mitochondrial Recycling Defect Linked to Parkinson’s Disease

    An article from neuroscience news. Interesting as dopamine has been highlighted in some research in ME and dopamine mediation ( agonists etc) has had effect for some . https://neurosciencenews.com/mitochondria-parkisons-19057/amp/
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Yup. The fat lady has not even started singing yet ...
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    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    Sounds a bit like GRADE. Process but potentially zilch consistency
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    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    I sincerely hope those with severe mental illness have advocates
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    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Need to remember that one !
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    United Kingdom: NIHR Long Covid research funding decisions 2021-2

    I' ve been in touch with ME Action Scotland who will do some digging .
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    United Kingdom: NIHR Long Covid research funding decisions 2021-2

    I wonder if there is a protocol ?
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    United Kingdom: NIHR Long Covid research funding decisions 2021-2

    Ironically one of their campuses can do CPET as part of the sports performance courses !
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    Covid-19 vaccination experiences

    My daughter's friend experienced the same. Pfizer 2nd jag seems to hit harder ( anecdotally more females and more side effects if on pill / hrt) She is in GP training. Took 2 weeks to get back to normal. She felt like she had been run over by a bus with a migraine and flu mixed in ETA I...
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    EDS, hypermobility, and the link, if any, to ME/CFS

    Moved post
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    History on an endless loop . So sad
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    Evaluating Routine Blood Tests According to Clinical Symptoms and Diagnostic Criteria in Individuals with [ME/CFS], 2021, Baklund et al

    Our gp was slightly amused when I gave her a copy of blood tests over 4 years. ' we don't use bloods like that ' Visible were clear shifts in glucose, ferritin , electrolytes and TSH Apart from creatinine and urea, these never fell outwith normal ranges . As my daughter was still growing...
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    "My experience of chronic fatigue syndrome" anonymous 16 year old

    Did the ME Action clinic survey take in paediatrics - or was it only adults? The contrast may be illuminating
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    "My experience of chronic fatigue syndrome" anonymous 16 year old

    I have yet to read the article ( will later ) but the immediate takeaway is that snippets quoted above are a good illustration of Sonya Chowdhury' s remark that children use different language to describe their illness. Given Bath / Bristol have updated their website to include long Covid...
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    How can you be added as a stakeholder after the evidence has been assessed and the official draft has been issued?
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    Trisha Greenhalgh on ME/CFS and Long Covid

    How convenient
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    The biology of coronavirus COVID-19 - including research and treatments

    That thing about not looking at data .... I havnt read the paper just the thread .
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    Trisha Greenhalgh on ME/CFS and Long Covid

    When you have had a profesional lifetime with certain constructs in place, cognitive dissonance is a coping mechanism.
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