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Trial By Error: Why Are Exercise Studies for Long Covid Still Failing to Address PEM Adequately? "No ”exercise reporting template” for long Covid is acceptable if it fails to include a recommendation of rigorous pre-screening for PEM/PESE. Since many patients themselves might not be aware of...

Study information Scientific title A randomised controlled trial of specialist Physiotherapy for Functional Motor Disorder (Physio4FMD) Acronym Physio4FMD Study hypothesis Functional motor disorder (FMD), also known as conversion disorder, is a common disorder affecting movement. Patients...

Good response. "To us—public health scholars with lived experience of post-COVID-19 condition—the model appears indistinguishable from old biopsychosocial models. For decades, such models have been misused to inaccurately characterise similar conditions, such as myalgic encephalomyelitis (also...

Perhaps in Spain but not in the UK. They don't explain what criteria was used to diagnose the ME/CFS patients. (Cross posted with Cassava)

SUMMARY This study is testing a new brief mindfulness practice for people suffering from long COVID-19 symptoms. People suffering from long COVID are particularly vulnerable to negative emotions, as they must also cope with the long-term uncertainty of physical and psychological stress beyond...

Background Chiari malformation type I (CMI) is relatively common neurosurgical condition typically treated with posterior fossa decompression. However, the management of CMI in patients with heritable connective tissue disorders (CTDs), such as Ehlers-Danlos Syndrome, Marfan Syndrome, or...

Background A proportion of patients with Lyme borreliosis (LB) report long-term persisting signs and symptoms, even after recommended antibiotic treatment, which is termed post-treatment Lyme disease syndrome (PTLDS). Consensus on guidance regarding diagnosis and treatment is currently lacking...

Background Individuals’ beliefs about the etiology of persistent physical symptoms (PPS) are linked to differences in coping style. However, it is unclear which attributions are related to greater expectations for improvement. Method and Results A cross-sectional regression analysis (N = 262)...

Objectives Multiple chemical sensitivity (MCS) is a rare multisystem and poly-symptomatic disease characterised by a report of various somatic symptoms attributed to inhalation of volatile chemicals in usually harmless doses. The aim was to explore four selected social factors and the risk of...

Introduction: Many people experience persistent or new-onset symptoms such as fatigue or cognitive problems after an acute infection with COVID-19. This phenomenon, known as long COVID, impacts physical and mental wellbeing, and may affect perceived quality of life and occupational perspectives...

Lots of mentions of ME/CFS. Thought this was less than ideal, my bolding. "Post exertional malaise (PEM), also called “crash,” has been clinically defined as an increase in fatigue, pain, cognitive dysfunction, and flu-like illness after physical exertion, mental activities, or stressful...

Although most individuals recover from acute SARS-CoV-2 infection, a significant number continue to suffer from Post-Acute Sequelae of SARS-CoV-2 (PASC), including the unexplained symptoms that are frequently referred to as long COVID, which could last for weeks, months, or even years after the...

For those who need a direct link to the comment article, https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(23)00053-1/fulltext

"Significantly, though, the OHCs [Online Health Communities] studied here pose no threat to the more fundamental idea that science is the path to better health care; both ME/CFS and Long Covid patients are notable for their unshakeable confidence in biomedical science." Unshakeable confidence...

Not sure I agree with this [bolding mine], "In the consultation [of the 2007 NICE Guideline] over the surveillance proposal, OHCs shifted much of their effort from trying to get patient surveys taken more seriously to trying to get RCTs taken less seriously. The committee that drafted...

Mindfulness better than CBT for treating depression, study finds "Practising mindfulness is much better than taking part in talking therapies at helping people recover from depression, a British study has found. People who used a mindfulness self-help book for eight weeks and had six sessions...

Full title: Clinical Effectiveness and Cost-Effectiveness of Supported Mindfulness-Based Cognitive Therapy Self-help Compared With Supported Cognitive Behavioral Therapy Self-help for Adults Experiencing Depression The Low-Intensity Guided Help Through Mindfulness (LIGHTMind) Randomized...

"#TREATME Update: 1. Over 3,600 responses! 2. This Tuesday I zoom with experts involved in complex chronic illness research & machine learning to review survey & discuss plans for analysis! 3. Due to requests, I'm keeping the survey open an extra two days thru Tuesday."

I'm sure you will all be excited to learn that we have made the first version of our data analysis plan available on our website. Read our blog about what it is, why it is important, and why we are sharing it in our blog, https://www.decodeme.org.uk/our-gwas-data-analysis-plan/ Social media...

My best guess is that it has been blocked due to second- or third-hand connections to accounts that TG took offence at. This earlier post from Jan 2021 links to a Twitter poll that shows, at the time, 67% of 678 respondents reported having been blocked by TG, so I don't think her blocking...