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With DecodeME we will look to limit things to an hour at most, and in some cases have moved to 30 mins max to accommodate patients. Four-hour long meetings is just to make things convenient for those who are healthy enough to have a career, not for patients.

Not impressed with "Available and able to participate in up to seven four-hour videoconference workshops over the next 10-12 months.". They aren't exactly trying to make things accessible to patients with that.

NANDSC ME/CFS Research Roadmap Working Group "In 2019, the National Advisory Neurological Disorders and Stroke (NANDS) Council Working Group for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) presented the Report of the NANDS Council Working Group for ME/CFS Research(pdf, 669 KB)...

No, we are describing the same project.

Abstract Objective To analyze the dynamic changes of renal function longitudinally and investigate the cytokine profiles at 6 months in patients with Omicron COVID-19. Methods 47 patients with a proven diagnosis of Omicron COVID-19 from January 2022 to February 2022 attended a 6-month...

Abstract The number of patients suffering from long-COVID is currently increasing rapidly, even after the acute symptoms of COVID-19 have improved. The objective of this study was to investigate the effects of a pilot transcranial magnetic stimulation (TMS) treatment on neuropsychiatric...

Abstract Objective: To investigate whether a paediatric Short Fatigue Questionnaire (pSFQ) assesses a valid construct for subjective fatigue, to assess its psychometric properties and provide a cut-off score for severe fatigue in children. Methods: The pSFQ consists of 4 items from the...

Abstract Many patients that were infected with SARS-CoV-2 experience cognitive and affective symptoms weeks and months after their acute COVID-19 disease, even when acute symptoms were mild to moderate. For these patients, purely neurological explanations are struggling to explain the...

Yes, that's right.

Can you help promote the study? We are looking for a couple of people in the UK, who have participated in DecodeME (including donating saliva), and who are willing to appear on film talking about their experience. Ideally you would be someone at the severe end of the spectrum, and/or male and...

How and why? And for anybody who didn't know who is trying to follow this, NG206 is the new NICE guideline for ME/CFS. I don't know what ICS is, so can't help there. What? You have dropped a URL into a new thread with a mysterious title merely saying "This needs watching.". For those forum...

Watch what and why?

That the authors are based at Aarhus University is no surprise. Looking at the references also shows their influences (my bolding). 1. Ballering AV, van Zon SKR, Olde Hartman TC, Rosmalen JGM Persistence of somatic symptoms after COVID-19 in the Netherlands: an observational cohort study...

Objectives The aim of this study was to evaluate employee return-to-work (RTW) rates and examine predictors of absence duration after COVID-19. RTW rates were referenced against RTW rates after absence due to flu-like symptoms and assessed over the course of the pandemic. Methods Routinely...

From an IACFSME email. "2022 Clinical and Scientific Conference July 27 - 29, 2023 Call for abstracts/ workshop proposals: Anticipated February 2023 Mark your calendars to join us July 27 - 29, 2023 for our International Scientific Conference to be held at Stony Brook University in Stony...

Abstract Objective Subjective cognitive dysfunction (SCD) affects 55-75% of individuals with fibromyalgia (FM) but those reporting cognitive difficulties often lack corresponding objective deficits. Symptoms of depression and anxiety are prevalent in FM and may account for part of this...

Merged thread Full paper now published Abstract Background The term ‘brain fog’ is increasingly used colloquially to describe difficulties in the cognitive realm. But what is brain fog? What sort of experiences do people talk about when they talk about brain fog? And, in turn, what might this...

Abstract Background As clinical understanding of pediatric Post-Acute Sequelae of SARS CoV-2 (PASC) develops, and hence the clinical definition evolves, it is desirable to have a method to reliably identify patients who are likely to have post-acute sequelae of SARS CoV-2 (PASC) in health...

Coronavirus disease 2019 (COVID-19) infection is associated with risk of persistent neurocognitive and neuropsychiatric complications, termed “long COVID”. It is unclear whether the neuropsychological manifestations of COVID-19 present as a uniform syndrome or as distinct neurophenotypes with...

Abstract Objectives To describe the physical and mental health of children and young people (CYP) 6 months after infection with SARS-CoV-2 and explore whether this varies by COVID-19 vaccination. Design A non-hospitalised, national cohort of people aged 11–17 years old with PCR-confirmed...