Reminds me of the plane ditching in the Hudson River a few years back, and everybody surviving. It was often described as the 'miracle on the Hudson'.
But the pilot was absolutely clear that it was no miracle, it was because the airline industry paid attention to science and engineering, and...
"The committee reinforced there is no therapy based on physical activity or exercise that is effective as a treatment or cure for ME/CFS."
So how can they recommend all this 'management' and 'planning' about physical activity and exercise?
It just smells to me like the BPS clowns trying to...
These guys seem unable to distinguish between recovered, and adapted to or accommodated.
And who in their right mind would want the ME/CFS label? I totally get why the long-haul COVID patients are running a mile from it when they see what has happened to us.
He's not retired, he's resting...
It's a fine line.
Yeah, I am nervous about that too. With some honourable exceptions, the current batch of NHS 'specialists' are not fit for the purpose.
Initial impressions & thoughts:
Page 9, 1.2.5
Do not delay making a provisional diagnosis of ME/CFS.
Very important. The sooner a patient can start managing their activity profile appropriately, the greater their chances of a better long-term outcome (though not necessarily a full recovery...
That's the study I want to see, and be in. :D
One thing having ME has taught me is that social interaction (and I include politics in that) is a huge part of what human brains are set up to do. Even the most enjoyable socialising is very draining for me.
Somatosensory amplification (SA) has been described as an important feature of somatoform disorders, and an “amplifying somatic style” has been reported as a negative connotation of body perception.
Gotta admit, they are experts at bootstrapping. :thumbsdown:
And don't want to.
Yes, those poor misunderstood marginalised BPS heroes, denied their due power and praise by those bastard patients who just don't want to get better. :rolleyes:
Forgot to say that, in Australia at least, the two most common sizes of building wiring cable are 1.5 and 2.5 mm^2.
The 1.5 is for lights and fans, the 2.5 is for power points.
I am using the 2.5.
We have not needed masks here, so far, fingers crossed. But I have some just in case.
The best thing I have found for the nose bridge wire is standard electrical cable used in house wiring. Not the flexible stuff used in appliance and extension cords, but the stuff used behind the walls. The...
The lack of changes in fitness [in the PACE trial] may suggest that there was a lack of adherence to the exercise programme; however, this was not directly reported.
Or that it just didn't work, even in those who did adhere to the exercise programme.
However, patients who recover appear to have less pain than those who do not recover.
On what planet does the definition of recovered include still having pain?
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