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  1. Sean

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    Reminds me of the plane ditching in the Hudson River a few years back, and everybody surviving. It was often described as the 'miracle on the Hudson'. But the pilot was absolutely clear that it was no miracle, it was because the airline industry paid attention to science and engineering, and...
  2. Sean

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    "The committee reinforced there is no therapy based on physical activity or exercise that is effective as a treatment or cure for ME/CFS." So how can they recommend all this 'management' and 'planning' about physical activity and exercise? It just smells to me like the BPS clowns trying to...
  3. Sean

    Psychological Profiles and Clinical Clusters of Patients Diagnosed With Functional Neurological Disorder, 2020, Pun et al

    The mental pathology here is that they can only interpret patient behaviour as pathological.
  4. Sean

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    These guys seem unable to distinguish between recovered, and adapted to or accommodated. And who in their right mind would want the ME/CFS label? I totally get why the long-haul COVID patients are running a mile from it when they see what has happened to us. He's not retired, he's resting...
  5. Sean

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    It's a fine line. Yeah, I am nervous about that too. With some honourable exceptions, the current batch of NHS 'specialists' are not fit for the purpose.
  6. Sean

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Initial impressions & thoughts: Page 9, 1.2.5 Do not delay making a provisional diagnosis of ME/CFS. Very important. The sooner a patient can start managing their activity profile appropriately, the greater their chances of a better long-term outcome (though not necessarily a full recovery...
  7. Sean

    Jo Daniels (on CBT, ME/CFS and Long Covid)

    That's the study I want to see, and be in. :D One thing having ME has taught me is that social interaction (and I include politics in that) is a huge part of what human brains are set up to do. Even the most enjoyable socialising is very draining for me.
  8. Sean

    A retrospective observational study .. somatosensory amplification in [FM], chronic pain, psychiatric disorders & healthy subjects, 2020, Ciaramella

    Somatosensory amplification (SA) has been described as an important feature of somatoform disorders, and an “amplifying somatic style” has been reported as a negative connotation of body perception. Gotta admit, they are experts at bootstrapping. :thumbsdown:
  9. Sean

    News from Belgium

    And don't want to. Yes, those poor misunderstood marginalised BPS heroes, denied their due power and praise by those bastard patients who just don't want to get better. :rolleyes:
  10. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    re: Fauci Where people are coming from is less important than where they are going.
  11. Sean

    Marketising the Mental Health Crisis: How the CBT Empire-Builders Colonised the NHS

    All roads lead to psychopathology. Especially when they don't.
  12. Sean

    Question: Coronavirus & home sewn masks?

    Forgot to say that, in Australia at least, the two most common sizes of building wiring cable are 1.5 and 2.5 mm^2. The 1.5 is for lights and fans, the 2.5 is for power points. I am using the 2.5.
  13. Sean

    Question: Coronavirus & home sewn masks?

    We have not needed masks here, so far, fingers crossed. But I have some just in case. The best thing I have found for the nose bridge wire is standard electrical cable used in house wiring. Not the flexible stuff used in appliance and extension cords, but the stuff used behind the walls. The...
  14. Sean

    Prediction of Discontinuation of Structured Exercise Programme in Chronic Fatigue Syndrome Patients, Kujawski, Newton, Hodges et al, 2020

    The lack of changes in fitness [in the PACE trial] may suggest that there was a lack of adherence to the exercise programme; however, this was not directly reported. Or that it just didn't work, even in those who did adhere to the exercise programme.
  15. Sean

    Do treatments for paediatric chronic fatigue syndrome improve pain? a systematic review, Ascough et al, 2020 G535(P)

    However, patients who recover appear to have less pain than those who do not recover. On what planet does the definition of recovered include still having pain?
  16. Sean

    Recognising and explaining functional neurological disorder, 2020, Stone et al

    One might even say it was old wine in new bottles.
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