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    News from Aotearoa/New Zealand and the Pacific Islands

    One of articles accessible via tweet
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    Trial By Error: An Update about the Pediatric MUS Systematic Review

    Seems some of the SMILE issues are not unusual
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    Who is Simon Wessely?

    I can't t help feeling it will be GWI and not CFS that will be his undoing. GWI at least gets US research funding and Sir Simon' s stance on this is well documented When the arguments start rolling back on it the end game may be playing out.
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    Researchers propose deep trawl of DNA to help uncover the causes of ME/CFS (Simon McG blog)

    How many other bio banks/ DNA sampling data is there worldwide? A coordinated, standardised format may be able to glean existing data . Both omf and klimas have requested and received genetic data. Could some who have forwarded this previously be interviewed ( Skype?) / complete a...
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    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    Re the Karl Morten ATP profiles test replication ( which showed no significant difference on fresh blood) - has anyone looked into why there is such a big difference between controls and pwme after 24 hours ( would that not give a clue as to something awry?)
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    What's behind ME allergies and sensitivities to foods, odors and chemicals?

    Th2 shift has also been suggested for extended fight or flight mode . In anticipation of an oncoming battle your body anticipates wounds and bacteria . In mice it seems this prolonged response triggers epigeneric changes ( now a new normal) some of which are heritable. I looked at this years...
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    Lymph glands and impact

    The common feature of throat/ underarm lymph glands being swollen and problematic in PEM has been discussed. Given there are lymphs in multiple other places, could these account for other symptoms, eg at head/ neck contributing to increased pain: in lungs perhaps to air hunger: in brain...
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    Congressman Jack Bergman becomes Champion for ME

    Yes. I had the same reply today too
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    Evolving evidence about diet and health, 2018, Mente et al, Lancet

    Healthy weights may be a bit of a misnomer. The rise of the TOFI ( thin outside fat inside) whilst some overweight individuals are metabolically healthy suggests a complexity that does not lend itself to broad generalisations. The type of adipose tissue and its role in signalling seems to be a...
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    UK House of Lords/ House of Commons - relevant people and questions

    Here they are being rediagnosed with FND
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    Congressman Jack Bergman becomes Champion for ME

    I have emailed also - Dear Congressman Bergen I’m writing to thank you for your support for those with ME/CFS. As you will know this is a worldwide issue, and the US has taken a lead in its recent assessment of GET as being an ineffective treatment option for ME/CFS. Whilst we are not in the...
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    Inclusive Education for Students with Chronic Illness—Technological Challenges and Opportunities - Anna Wood June 2019

    Thanks @Sly Saint Nisai and Interhigh have been providing virtual real time with recorded lessons ( amongst other providers for over a decade). Many parents who can fund it use it and it is a gamechanger. Some LAs will find Nisai in England , Wales and NI. The IT is not an issue, the...
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Is it normal practice to publish a " taster" and invite comments prior to publication of the full piece? It just seems weird.
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    Heart Rate Variability and ME/CFS

    Interesting. We have done 2 hair tests, around 6 months apart to track electrolyte/ cation status The second test showed improvement in electrolyte ratios , but a high level of mercury ( not high previously) and increase in aluminium levels. My assumption was that improvement in methylation...
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