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    Autism and ME/CFS

    ADD is slightly different from ADHD ( doesn't t have the hyperactive part, if anything less active and engaged). A friend's daughter was recently diagnosed at 21 with ADD. Noone picked up on it. Idiosyncracies were simply out down to her personality until she could not cope at uni.
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    Autism and ME/CFS

    You can epigenetically switch things off / on . Perhaps this is what is suggested?
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    Clinical symptoms and markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection, 2019, Wyller et al

    Note the reference to CBT and GET in UK.
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    Cognitive Behavioral Therapy "Evidence-Base" Is Exaggerated (Psychology Today)

    perhaps the reason that the CBT for the elderly did not have a befriending comparator group? lonliness in the elderly is a factor in health outcomes.
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    Cholesterol anyone ?

    Cholesterol is not the problem. Insulemia is.
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    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    There was a really interesting thread on PR a couple of years ago re purinergic signalling by necessay8. May be worth another read.
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    Physios for ME

    Joan McParlland had queried re twitter and was told it was not pertaining to NI, hence query.
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    Physios for ME

    Is this England and Wales only or UK wide?
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    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Thank you
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    The Norwegian ME Association's report on severe ME

    This
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    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    One for @adambeyoncelowe @Keela Too and @Jonathan Edwards to bring to the NICE table?
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    Physios for ME

    Thank you
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    Updates on status of ICD-11 and changes to other classification and terminology systems

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    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    We have never had any ( of either)
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    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    Kafkaesque
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    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    How does it work if there are no clinics, nor specialists?
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    Researchers propose deep trawl of DNA to help uncover the causes of ME/CFS (Simon McG blog)

    Thanks for the clarification @Simon M . I have a feeling in our case that epigenetic expression helped create the conditions for a trigger to tip things over. I could be very wrong. So not causal but a facilitator. This seems a study that needs to be done. The difficulty, given history, may...
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    News from Aotearoa/New Zealand and the Pacific Islands

    Thanks for correction. Great for advocacy- just need to keep the momentum going!
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    MUS services in UK and other MUS related issues

    Alive and well here. Recently listened to a educational psychologist enthusiastically espouse ACEs training in schools and CBT for autistic children....no robust evidence base for any of it.
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    Brexit impact on disabled

    From tweet this morning - I don't t know if any rely on support services funded by EU, or have care issues due to staff relocating, but perhaps a discussion re potential impacts may help planning/ solutions to a void further crisis?
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