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I hope your daughter dosn' t suffer too much payback. Thus is something we could not contemplate at this point in time, but i can see the usefulness.

I did wonder if this was some form of autoantibody stuck on translocator membranes as postulated by Prof Behan in 1980s . There are a lot of interesting studies which got sidetracked after BPS hijacked agenda - which are being rediscovered- eg sticky blood. These are not new phenomena, just...

Perhaps check out how charities represent this - apart from tymes trust which proffer fatiguability, fatigue tends to be the first symptom on the list . Perhaps they could lead

My daughter played netball, trained and played competitive football ( SFA standard) and generally ran about. She had also learned to surf and whilst our waves are not decent enough, would happily spend hours body boarding in summer. As puberty kicked in she was probably slightly less active...

Replication - hence importance of Chris Ponting' s research. Outcomes during/ from this study may also drive replication necessity for other aspects. It may help give a direction for future research areas - important when proposals are invited for funding.

It is dominated by fatigue in definitions and lists of symptoms and does noone any favours. This is what has muddied the waters for so long

I wonder if he is aware that EC' s LP paper is under consideration by NICE ..

Can someone tweet link to Coyne?

We have seen how this personality type plays out before ...

Yes, that was my query too. I don' t know if this person accessed after some improvement ( and assigned further improvement as due to LP) A lot of reports are contrary to the experience of ME, though there are others which are not simply explained .

My stepsister has 2 friends, both of whom were bedbound ( one for over two years), who both claim to be cured by LP. Whether the ME diagnosis was correct is one aspect, but both back to working ( one part time ) . It does seem a bit of a conundrum.

Just as NICE are looking at guidelines. ECs paper and this ... timing is everything.

text - with my bold Ministers said in 2017 that: All documents up to 1995 are available through the National Archive. However, following an exercise conducted by Factor 8 and hundreds of Freedom of Information requests, it was found that this, in fact, was not true. We had attempted to take...

useful for reference for NICE?

Yes, i watched this. Two points that sunk in were Little research had actually been done on the effect and efficacy of these drugs in children and adolescents - the use had been largely justified based on effect in adults ( developing brains are different) Note that this is not uncommon...

New press release that simply reinforces the pervading political culture https://www.factor8scandal.uk/statements-docs/2018/7/3/press-release-department-of-health-apology-for-false-statements?format=amp&__twitter_impression=true

As my daughter had both chickenpox and shingles in primary school, then glandular fever it definately intrigues me.

Yes, that's what piqued my interest a bit more

Given that NICE guideline review has highlighted children and the severely affected the timing of this is good. But will it have the desired effect? For those that tweet effectively, drawing attention to this would be appreciated.

https://phoenixrising.me/archives/5806 I came across this post as it had been " bumped" up. Does anyone know if there has been any further development of this theory?