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    United Kingdom: The Royal Society of Medicine

    I think the clue is in the last paragraph of the flier " don' t miss your opportunity..." Controlling narratives is key.
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    Symptom diary

    My daughter uses daylio app - less complex than flaredown and easier for her to manage. She sets her own symptoms and also achievements ( like having a shower) which can make ie easier to track back for PEM causes . It is basically a mood app that you can customize with a broad sprinkling of...
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    GETSET letters in The Lancet

    Letters are all excellent- many thanks . I am working up to this degree if lucidity ( hopefully)
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    GETSET letters in The Lancet

    I have not read the paper, and do not know if it is at all relevant, but is there a NNT figure ( as in the quoted 7 for PACE) ?
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    Psychosocial Profiles of Adolescents with Chronic Fatigue Syndrome: Correlations with Fatigue Severity and FITNET Treatment Outcome

    What is the definition of "maternal psychopathology" - given the realities of this illness and the gulf between reality and treatment options, it may not be surprising that mothers with a higher degree of " psychopathology" would have children who had greater improvement. Any comments @chicaguapa ?
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    Germany: Restraining psychiatric patients requires court order

    UK leaves EU in March 2019 - looking more likely to be crashing out without any deals, so likely no / limited EU Court jurisdiction
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    Germany: Restraining psychiatric patients requires court order

    Sad contrast to where the direction things are taking in UK
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    Mitochondrial research

    Thought this was interesting http://www.sciencemag.org/news/2016/02/why-do-our-cells-power-plants-have-their-own-dna
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    Mirror: ME sufferer spent seven years in bed but she's now conquered the highest mountain in Britain for charity

    It reminded me of peanut allergy being treated via peanut loaded probiotics - dose starts low and works up as person is gradually desensitised.i think this was in Australia and was devised for children It' s not the substance itself but the dose . For people with many allergies/ intolerances...
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    Ron Davis's trypanosome 'signature' finding (IIMER conference 2018)

    Mmm. Florence Nightingale' s illness ( purported to be ME) manifest after the Crimean war...foreign conditions, stress .....
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    Tinnitus poll: Do you experience it?

    Check medications " ringing in the ears" is a defined side effect for some meds
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    Questionnaire on ME/CFS

    H.Pylori as a condition - seems to be linked to liver function too?
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    Questionnaire on ME/CFS

    I don' t know my aunt' s full medical history, but i do know that she had pretty bad hepatitis when she was young.
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    The Lancet: UK life science research: time to burst the biomedical bubble

    When i was at uni i was taught how to bullshit pretty well, but this is a masters course in it....
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    Five years before multiple sclerosis onset: Phenotyping the prodrome (2018) Wijnands et al

    We don' t do the same bloodwork, but i managed to persuade GP to test Vit D, which was very low. Iron borderline too.I will have to check files for other values. We don' t test B12, and were supplementing by the time the suggestion had been accepted Are there any studies re vit D and...
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    30 parliamentarians from all parties calling for NICE to revise their guidelines on depression

    Methinks they doth protest too much ... https://www.madinamerica.com/2018/07/30-mental-health-experts-write-secretary-state-unprofessional-conduct-uk-royal-college-psychiatry/
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