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    "Answer to IBS is in the mind" - media coverage of new Chalder/Moss-Morris trial

    Although a tricyclic it works on seratonin pathway. Do you have seratonin issues?
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    Blog: "The PACE PLOS One data will not be released and the article won’t be retracted", James Coyne

    Any way we could link this to @dave30th to boost contributions?
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    A general thread on the PACE trial!

    I am just surprised that noone already has.
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    Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Holtzman et al. (2019)

    Yup, I can exercise (power walking for one hour 2-3x/week) on days I'm feeling ok without PEM or feeling anything the next day. Out of interest @Mij , how long has it taken to get to this state?
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    This says everything about why funding David should be a priority 21st century UK.
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    The face of postural tachycardia syndrome – insights from a large cross‐sectional online community‐based survey, 2019, Raj et al

    It may reflect how it was accessed and / or promoted.
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    Open Recruiting: Stony Brook University, Daily Activity Patterns and Heart Rate Variability in ME/CFS

    My aunt is severely affrcted, so this may not mean anything for you, but heart palpitations seem to correlate to magnesium status for her. Things have been much better since she dies magnesium via injection
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    Open Recruiting: Stony Brook University, Daily Activity Patterns and Heart Rate Variability in ME/CFS

    Could it be cumulative activity ? We have big variation 2 days after anything significant - it ramps up and down either side of this. So max heart rate could be on a day where nothing much is being done ( other than PEM)
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    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    What a wasted opportunity. So much that could have been captured and analysed . This seems a halfhearted attempt to publish something rather than setting out to find something meaningful. No doubt there will be a follow up which will swallow more funding. It is a potentially good subject in...
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    BBC1 Doctors 17 April 2019 Storyline about PIP (UK benefit)

    Some programmes do stay around but need searched for. Adam Curtis' "Bitter Lake" was accessible fir 2 years, but needed a bit of searching.
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    Blog: Spoonseeker, "The Cult of MUS" [guest post by Couch Turnip]

    The Mickel therapy inventor? I have a friend recently diagnosed with CFS who has just shelled out a fortune for this. ...
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    Managing Chronic Fatigue using Scientific Insights from N-of-1 Studies - 2018 - Dr Suzanne McDonald, Qld Australia

    I've not read the blurb, but even some form of comparative group would seem to be useful - healthy controls or another chronic illness to flag up the nature and degree of any differences? Apologies if this is being done
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    Why has 'persistent enteroviral infection' been dropped as a research strand in ME/CFS? (Jen Brea asking)

    If negative studies are not published, how much time and money is wasted reinventing wheels ? How many aspects pursued that could have been better informed? Negative results and mistakes offer insights . Is it ego that denies their important role?
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    Fatigue in Epstein-Barr virus infected adolescents and healthy controls: A prospective multifactorial association study (2019) Wyller et al.

    Did Klimas or Hanson not do an adolescent EBV study over a longer timeframe with Gordon Broderick doing the " fancypant" maths? It might be interesting to compare immune markers etc. Too late for me to try and get my head around anything tonight.
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    Hannah Rapley thesis incl. staff’s experience & knowledge of fabricated or induced illness within a paediatric chronic fatigue setting

    From my inbox ( also posted on " call for tenders..." thread https://www.openforumevents.co.uk/events/2019/safeguarding-children-promoting-welfare-preventing-harm/?utm_source=OFE+2+SGC+8.4.2019+3+PRIVATE+WC+15.04.19&utm_medium=email&utm_campaign=OFE+2+SGC+8.4.2019 More abuse orientated. I am...
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    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    From my inbox this morning ( I have a varied client group) https://www.openforumevents.co.uk/events/2019/safeguarding-children-promoting-welfare-preventing-harm/?utm_source=OFE+2+SGC+8.4.2019+3+PRIVATE+WC+15.04.19&utm_medium=email&utm_campaign=OFE+2+SGC+8.4.2019
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    A general thread on the PACE trial!

    Click the image within the tweet
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    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    There's a misogynistic streak through all of this.
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    Trial By Error: Crowdfunding, Week 2; and more Sharpe and Chalder

    There is a lot at stake. The methodology underpinning PACE underpins so much behavioural research that little would hold up to scrutiny. That simply cannot be permitted to happen for career reputations or political implications. We have changes to primary care in England paving the way for...
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    News article - The crippling brain condition doctors say is all in your mind

    Already being done - a few FND with CF being diagnosed in Lothian ( the land of John Stone)
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