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That supposes you consider the underlying condition to be real

I think a non understanding of PEM underlies this. My daughter on this scale is 25-30. On a good day, yes she could potentially walk with a cane to the top of our road and back, resting en route ( the road is approx 70- 80 m to top). She would then not be able to do much else for the rest pf...

We did have a member with direct experience - not positive. She was also deemed to have a COI for NICE Guidelines ( potentially due to stated views on CBT/GET) Sorry can' t remember her name

Shared amongst Facebook closed groups with suggestion that Glasgow venue could use it on 11th ( George Square so big footfall potential) How much would it cost to screen on OMF Times Square pitch ?

Brilliant article @chicaguapa

Thanks @Adam pwme . this is a very powerful advocacy resource. we need to get it beyond the ME sounding baord that is sufferers and their families and into mainstream .How should it best be used? can it be projected onto buildings for ME awareness on 11th?

H Here there is a coded system. with specific codes for authorised and unauthorised attendance - separate codes for medical appointments etc. It can break down if you are on a reduced timetable - there is a signing in and out process at the front desk and this data is entered onto the...

In Scotland all hell broke loose over illegal data sharing between schools and third parties ( including health , social services) a few years ago. There has been a significant court judgement regarding this and some parents are pushing for and enquiry. Politically it is too sensitive and i...

me neither.

well done @Tilly

Unfortunately surveymonkey does not let you save and return to a survey- a method where you could do this would have been ideal as you could have broken it down into sections and done a bit at a time. I suppose a more complex interface would have been expensive to set up? ETA hadn't read full...

I think this is a very valid point - what is the attendance datum ( say for the previous 3-6 months) from which you are measuring. The interventions have to be set oin context to what is " normal" for these individuals. This age group is also the one with the best prognosis for natural recovery...

If there is a lot of missing data how robust can any conclusions be. I suspect data protection rules may have stymied procuring official attendance records. When it comes to children data sharing can be extremely strict in education. The study may have straddled timescale for recent data...

Both my son and daughter were ill after glandular fever ( we do not do serology here to know whether EBV/ CMV). Both did not have significant glandular fever ( were not stuck in bed . sore throats mainly, tested afterwards when not getting better was an issue ) but both had issues recovering. My...

Hmm It' s similar to the Gosport Hospital scandal too - things moving now after years and years. I take it enough people have died off to reduce compensation and / or some people in charge have retired/ died ...

This

What surprised me was that this is news. Having read and been told that your body does not differentiate between physical and psychological stress, that cortisol modulates over 300 genes, that in rat models stress is epigenetically expressed and for some genes heritable, i had perhaps assumed...

Perhaps cognitive dissonance is a protective measure. Bottom line is that too few people actually want to participate. Whilst i have no direct experience, from parents forums there was often a perception that it was a Hobson' s choice situation for some, and others had been pestered so much to...

http://doctoraseem.com/the-great-statins-divide/

I did read a wee bit about this a long while ago ( the Maryanne Demasi fiasco). All cause mortality seems to have been forgotten about. Only of use if you had had a heart attack previously. There was also a difference if you were female. There is also the small issue that cholesterol doesn't...