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    Dr Karl Morten - UK researcher based at Oxford University

    What does the difference in results after 24 hrs mean. If there is a clear difference to healthy controls after 24 hours would even that not imply something awry?
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    The Week: I'm a 40-year-old stay-at-home kid - and it isn't so bad

    This reminds me of a comment from Myhill' s MAIMES campaign. A husband had ME, basically bedbound His wife was his carer and asked for care to be put in place for him whilst she went into hospital for treatment ( from memory a 2 week inpatient stay - but could be wrong ). No family members...
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    Cognitive behavioural therapy for ME/chronic fatigue syndrome is not effective. Re-analysis of a Cochrane review, 2019, Vink & Vink-Niese

    SMILE needs to be demolished to achieve that. If all you did was scan abstracts for evidence bases it would provide a " credible" alternative. Mr Parker is about to cash in. Who funded SMILE ?
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    More PACE trial data released

    To have achieved this in full health would gave been difficult. To do so with ME is amazing. I think you need to pick your superhero cloak colour !
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    The pathway from glandular fever to chronic fatigue syndrome, 2011, Moss-Morris et al

    Boom or bust by another name
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    Article: The alarming hijacking of the BioPsychoSocial model

    From Twitter https://holeousia.com/2019/05/05/what-we-believe-in/amp/?__twitter_impression=true
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    General news about Fabricated and Induced Illness syndrome (FII)

    https://www.coyneoftherealm.com/2017/11/15/stop-using-the-adverse-childhood-experiences-checklist-to-make-claims-about-trauma-causing-physical-and-mental-health-problems/
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    General news about Fabricated and Induced Illness syndrome (FII)

    Sadly in many spheres, assessment is reduced to tick boxes with little room for interpretation. Lack of knowledge can also be significant. Check out Coynes blogpost on ACEs to get a feel for how bad things are. There is currently huge investment in ACEs .
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    Myalgia and CFS following immunization: macrophagic myofasciitis and animal studies support linkage to aluminum adjuvant persistency, 2019, Gheradi

    I think it may be " in the mix" I have a client who had tetanus jag just prior to onset, my aunt had multiple vaccinations for travel, and there are many girls with ME and or/POTS following HPV- which has a high adjuvent load.
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    General news about Fabricated and Induced Illness syndrome (FII)

    In my inbox, for info - growth industry https://www.openforumevents.co.uk/events/2019/safeguarding-children-promoting-welfare-preventing-harm/?utm_source=OFE+S2+SGC19+OC+03.05.2019&utm_medium=email&utm_campaign=OFE+S2+SGC19+OC+03.05.2019
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    frontiers in Pediatrics: Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome by Boneva, Unger et al 2019

    Yes, it seems to be another condition where diagnosis is a huge issue. I have a friend who took years to be diagnosed, and only through her own persistence. ETA subsequent reports of pain were then dismissed as related to endometriosis for over a year. When she managed to get investigation...
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    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    I think the Jenga game may be about to commence in earnest. If there is replication with a different control does the cognitive dissonance get worse? How many sticks have to be removed before the whole thing falls down?
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    The pathway from glandular fever to chronic fatigue syndrome, 2011, Moss-Morris et al

    Oxford/ Fukada for CFS?
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    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    In a row?
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    General news about Fabricated and Induced Illness syndrome (FII)

    I would love to concur Barry, but given the prolonged feet dragging re more than one paedophile enquiry it would seem children and the establishment are not a match made in heaven in the UK Power is a very asymmetric construct as manifest here .
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    Sore throats swollen glands

    Yep. Sore throat. Multiple swollen glands ( i never knew there were so many prior to my daughter getting ME) PEM brings sore throat on but glands in some form being swollen seems to be a pretty constant feature - just the degree of inflammation that changes. Voice getting croaky/ hoarse...
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    Psychiatrist Peter White at the Royal Society of Medicine 2008 - Defining CFS/ME

    Definitely worth tweeting
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    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    Yes that is a good point. Also deflects scrutiny from Bristol - breathing space before MAGENTA reports/ publishes. There also has to be a published evidence base for NICE - cue recent flurry of child and adolescent papers , sadly not really worth much given money spent.
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    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    Is it worth tweeting to Coyne with smile data ? He has quite a few followers. @JenB - this is kids! Dr Geraghty had been prolific recently too - I don't know if he can comment too? A critique is needed of both If these are the quality for an evidence base for NICE then not much positive change...
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    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    That is what makes this more concerning. Overall reputation of the institution bestows a confidence that may not be merited
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