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    I’m A Doctor With Chronic Illness. Here Are 12 Things I Wish People Knew (HuffPost)

    This should be part of syllabus for medicine students - a day' s experience.
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    ME severity scales - discussion

    Given the use of numerical scales for other conditions this may make things more readily comprehensible
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    Assessment of the scientific rigour of RCTs on the effectiveness of CBT and GET for ME/CFS: a systematic review (2019) Ahmed et al

    Seems particularly weird given his input on GWI
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    More PACE trial data released

    does this mean that @Chris Ponting will be able to access it?
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    May 2019 - Awareness Week including Millions Missing

    Great video @JaimeS - gets prevalence/ funding issue across.
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    Prof Chris Ponting's stirring speech about reseach at Glasgow Millions Mission event

    Thank you @Chris Ponting
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    May 2019 - Awareness Week including Millions Missing

    Link to smugmug with Glasgow pics. The pandas area reference to the lack of specislists - there are more pandas in scotland (2) than specialists for ME (1) https://meaction.smugmug.com/MillionsMissing-2019/United-Kingdom/GLASGOW/
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    May 2019 - Awareness Week including Millions Missing

    Great statistical reference- should enable it to hit home a bit better
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    The Independent - What are the symptoms of ME and how is it treated? May 2019

    This is where ME missed the boat again. A once a year opportunity to gain mainstream coverage and there is no coordinated statement on behalf of PWME; numerous soundbites of slightly contradictory information that can turn people off / reinforce stereotypes. This is where Valerie Elliot Smith's...
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    Building an evidence base for management of severe ME (including sleep management)

    How many moderate / severe patients take supplements? I suspect there are common combinations, but overall these may be idiosyncratic. How to you modulate for these? Do you take these into assessment? Eg my aunt is bedbound. She had horrendous tachicardic episodes. Injected magnesium has...
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    Building an evidence base for management of severe ME (including sleep management)

    Track it with batch calibrated fitbit type devices and you may get an insight on usefulness re each approach from HR and sleep data. How you feel you sleep and how you actually sleep can be entirely different things.
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    The Week: I'm a 40-year-old stay-at-home kid - and it isn't so bad

    I don' t know. It was an early story in her MAIMES campaign so I assume that she is still here.
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    Blog: The PACE Trial: How a Debate Over Science Empowered a Whole Community [Carolyn Wilshire/ME Association]

    Sadly people are living longer
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    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    @chicaguapa . There are subtle differences in Scottish system re additional support needs ( eg don' t have SENCOs , EHCPs etc - different support plans and roles and the whole GIRFEC agenda) - if following up with more detail, or in more depth for secondary it may be worth bouncing it off...
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    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    I' ve emailed a link to our council " quality improvement officer." She was a secondary head and very good at responding to all things educational.
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    The Week: I'm a 40-year-old stay-at-home kid - and it isn't so bad

    Yes. I' m hoping this is one that will be investigated.
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    NZ Listener - Ills thought out - Wilson 2019

    Renamed as .... Schroedinger' s Disease ... Eta Or is this a manifestation of a double bind situation ?
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    Genetic Predisposition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Study 2019 Perez Nathanson Klimas et al

    @BeautifulDay
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    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    Would signalling not be more to do with uncoupling the supply and demand side of ATP production ?
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    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    To be demonstrative should this not be done before and 24, 48 hours after exercise ?
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