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not my number 1 but high on the list - viral symptoms and infections that go on and on.

If it was the Boots one I used I before I came down with Covid. It did take a while to develop and more than 4 days to return a positive Covid test which may be why?

Just came across this. After terrible treatment by the Post Office this woman ended up being diagnosed with ... FND. https://www.postofficescandal.uk/post/how-to-destroy-a-business-and-a-human-being-part-1/

Using family members as their 'healthy controls' appears to have been a huge mistake.

Do you have any particular group in mind? CFS wasn't invented 40 years ago and the ME groups seemed OK.

Dania, Can you please tell me which paper this is from? "Other studies have also linked CFS with stigma and other casual attributions, such as the struggle to maintain a coherent sense of identity". It's the last bit I would like to know about. I was once in your target age group and with...

I was thinking along the same lines after a visit to the doctor recently. One factor i think is that they don't understand PEM. They are thinking of fatigue and their own experience of fatigue or in injured "well" people or the elderly. Having no understanding of PEM, they think a Zoom call...

It does put a bit of a spin on the tired idea that it is patients that are the impediment to researchers wanting to get involved. Imagine being involved in this research and seeing Wallit put in a position of power, of seeing Shorter trotted out, the 'tired group' named, the paucity of...

It's more of 'the bastards don't want to get better' theme https://implementationscience.biomedcentral.com/articles/10.1186/1748-5908-6-132

If it was really just down to keeping a job or having a drink in the pub why not just stick to a diagnosis of 'conversion disorder' ? This would also be covered as a disability and adjustments made at work. They could use 'conversion disorder' and people at the pub may be equally clueless as to...

Certainly not. On the Long Covid groups there appears to be a genuine group of new and confused people diagnosed with FND. Also the POTS group. These are UK NHS patients.

I would agree with that to an extent. On the Facebook groups I belong to there are FND patients who suddenly appear from nowhere and post enthusiastically. They are similar to the posts from Lighning Process accounts in that they use the same words and refer people to the same FND website...

I am seeing similar reactions on Facebook groups from people diagnosed with Candida, heavy metal poisoning and any number of alternative ideas for their ME or LC. Some are very happy to 'finally know' what is wrong with them. They spent money on tests and treatments. They want to know why...

I feel better Arvo the more you explain it and I understand the full picture. But then I am not in the USA. Thank you. Could it be possible that Walitt was appointed because he was one of the few people interested in taking this on and at the same time considered a safe pair of hands? Once the...

I came across the Listen project again a couple of times when it was mentioned on a LC Facebook group. First mention was someone at a clinic being given a book to read and then fill in his 'progress'. The a webinar link was posted. https://www.listentrial.co.uk/ I was stuck i bed so attended...

Where would a population of influenza positive controls come from? I have never been given a formal test for influenza. Even in Queensland.

Is this in the print version or just online?

I found that the high wore off after about 3-4 weeks of Pred at 25 mg per day. I returned to my 'normal' level of ME functioning. It was very nice while it lasted. One side effect I enjoyed was that I lost a lot of water or swelling ? in my body. Rather than the moon face reported in the side...

I have been working through this and the other threads and most of my questions have already been followed up. Thank you all. My last one is this. In Wallit's new Kingdom of "Interoception disorders" where do the fMRI tests come from? He is not a brain expert or neuroscientist. Do the fMRI...

Mike, thank you. What a wonderful achievement. Will keep an eye out for an Albanian contact.