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Dr Fox not off to a good start. When asked (albiet badly) by the Coroner if he thought ME was real he replied with the standard blurb about all illnesses having a psychological and social component.

I think you are right about Beth Thompson being mentioned by Dr Warren. She was a dietitian and he relied on her reports https://www.royaldevon.nhs.uk/services/gastroenterology/nutrition/

Thank you @Nightsong. Your contributions are really valuable

There is more information in this interview with Maeve' mother on fluid intake . Said it was 'dangerously low' in hospital https://mecfs-med-ed.org/2023/05/31/a-life-cut-short-by-medical-neglect-interview-with-sarah-boothby-whose-daughter-maeve-died-at-27-of-severe-me-cfs/ With regards to...

Given the joint response to the NiCE Guideline that the RCGPs signed their victim status is a bit shaky https://www.rcgp.org.uk/representing-you/policy-areas/guidance-on-me-cfs

Vomiting up a meal causes a crash for me. I had food poisoning for about a year. Both the vomiting and the diarrhea made me crash and it was over and over again every day Choking on food/drink as well. My HR increases and I feel wiped out later. If Maeve was being sick with the NG tube in...

It sounds too close to the reasons given to PWME who are bedbound or want to use an aid like a wheelchair. I was denied a NHS wheelchair as I was told that if I used one my muscles would atrophy and I would lose the ability to walk the small amount as an example. People with ME who are...

Their 'defense' seems to be that Maeve was safe in the Eating Disorders Ward, she was the one who declined the NG tube, they respected her wishes etc, they considered the alternatives but nothing else was safe, so they listened to her decision to go home. It was unfortunate sad etc and...

I heard someone talk about the stomach being a "muscle" maybe in relation to that exchange? If Dr Warren (or another doctor) really thought the stomach was like a muscle and it either 'had to be used to keep working" or even 'working it would build tolerance" then we are talking about an almost...

Coroner talking about a Regulation 28 report. She is considering her conclusions first before making a decision if there will be one. She will not be giving her determinations next Friday though. Although it sounds like it's won't be long after.

Dr Warren doesn't seem to understand why if Maeve's condition was deteriorating why she was reported as wanting to be discharged.

Listening live ... I hear that the nurses were updating her records regarding calorie intake. Then it was reviewed by the Dietian. Dr Warren only was reporting 'hear-say' in his evidence at least on parts. He only read the reports from the Dietian. Dr Warren wasn't seeing the NG feeding...

If at night P-serine but not too late as it can cause (even more than normal) grogginess the next day for me.

It could also be Nitroglycerin. I have had one TTT with that.

The author is a Journalism student https://www.facebook.com/p/Ethan-Paterson-100009743711552/?locale=zh_TW The website says Glasgow Uni at the bottom. The 'Glasgow Standard' invented I guess as a way of their students practising writing articles. I don't think it is a 'real' newspaper.

Coming across the Hillsborough Law (mentioned in relation to the Blood Inquiry). https://hillsboroughlawnow.org/what-we-do

I thought this point was quite interesting "There was a failure to finance research into ways of heating the treatment to kill HIV and viruses" (And I feel so sorry for the poor people killed and injured and their families. Must be a very hard day for some today although the report seems good...

It was part of the FEC protocol. Any other questions just let me know.

I found a copy of the OX-PAQ questionnaire here https://innovation.ox.ac.uk/wp-content/uploads/2016/08/Ox-PAQ_-English_-UK_sample-copy.pdf

They released the results today on a Zoom webinar. Details were a bit vague and they didn't answer all the questions put to them online. They used something called Ox-paq to analyse the results. Patients improved by 3 points on that scale- which they were claiming is a success...