Search results

It was discussed on the ME groups at the time and some patients even went to see him when he was still in Italy. Personally I did find it interesting as I got a cat just before I became ill. The cat needed to be re-homed (and there was a dog which went somewhere else) as the previous person...

I have a folding stool that I take with me if not using a wheelchair. It's painful for me to sit using one for long periods of time. I also have blow up feet supports but the bigger ones are too heavy for me to to carry. Due to the cramped conditions in Waiting Rooms sitting with the folding...

When I was having chemo I was told that there was no where I could lie down. The chemo ward consisted of reclining chairs but I was too weak to recline one and they only reclined a little. The ward was full of families as people were encouraged to bring companions. There were not enough visitors...

I wonder what happened to him. On a previous Internet forum a patient went to see him I remember.

I am sensitive to noise, smells, heat, visual stimulation but these don't cause the same PEM that physical exercise does in the same way. As an example even if I get the 'brain overloaded' sensation it doesn't result in a delayed inability to walk etc that occurs after exceeding my physical...

Imagine if we could charge royalties for inventing and testing 'pacing'. At the very least people with ME should be credited somewhere? All the new LC staff getting paid to teach this. Shouldn't they be passing some of the credit on?

I get repeat viral symptoms for no apparent reason. The first 'warning sign" is that I start feel a little better out of the blue. I can think more clearly and move better. Then wham a few days later the virus or whatever it is strikes I thought originally that it could be a mini 'boom' as I...

Report on two deaths from the AZ vaccine. https://www.bbc.com/news/articles/cx2g921rd2lo Interesting timeline. I tried previously to put together something myself earlier 'Could doctors have been warned earlier' Plus comments from the Coroner who didn't seem to think that one victims severe...

It's not going to be the same for everyone but the symptoms I had from the vaccine were completely different to when I got the virus. I also tested myself for a Covid infection plus the hospital did it as well. The vaccine symptoms started as an acute onset on the evening of the vaccine and...

I started a personal injury claim using my house hold insurance. The problem was not finding a lawyer as the funding was in place. It was finding ME medical experts with a proven record of court processes. Back then we had very few doctors who were prepared to write court reports and act as an...

It could come down to having an expert witness. When I looked at this previously it was the lack of a NHS doctor willing to get involved in legal matters or any ME doctors with the relevant experience that would be respected in court.

It depends of the Coroner has to consider the Equality Act. She made reference to the Human Rights Act Article 2 Right to Life but decided it didn't apply. I didn't hear in her summing up if she considered the Equality Act but it may not come under the scope of an Inquest.

I was thinking on the inability of the NHS to allow for ME 'disability' in access to treatment. It's obvious from my own recent dealings that no one is reading the updated NICE guideline as they either don't know about it or don't care as it is not their 'Speciality'. The NICE guideline is in...

Very distressing at the Inquest now. Mrs Boothby very upset. Trying to question witness on why she wasn't helped when she asked for help from the District Nurse. Ms Jenkins. 'Why is the risk of not being able to receive hydration at home never recorded by the district nurse?' 'The Community...

There was also Burrswood Hospital but that was not NHS and stopped admiting people with ME. I don't know if Dr Worthley or Dr Findlay ever had experience of people needing feeding...

Was I right in thinking that the only person offering advice (based on his other patients) on how to possibly get Maeve to sit up a little more was Dr Weir? Listing to the hospital doctors this week there were references to "Maeve will try to sit up 3 times a day' and other nonsense. As if she...

I think it was in an email exchange between Beth and the senior Gastroenterologists My guess would be it refers to Maeve and mother. Beyond that I don't know sorry.

I heard him hesitate and stumble when he got to that. He may have said 'real'. He may have meant to say 'real'. He corrected whatever he said to that they were being used for Covid patients.

Coroner asking questions about Fludocortisone (?) now. I was waiting for another mention. On an earlier day there was a mention if this being discontinued in hospital.

We may have hit the crux of incompetence, inflexibility and disbelief? Beth Thompson. 'I appreciate with hindsight.. Best practise ... Functioning gut Will try to sit up to 45 degrees Not aware of vomiting Buying onto their belief it is a medical I need to have a Consultant come in and...