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Yes he is and slow enough for me to understand him his time!

<snip from email regarding workshop> If someone from your organisation would like to attend, please register by 15 December 2017 by completing and emailing the attached form to CFSME@nice.org.uk. If you have any special requirements (for example, if you need a hearing loop or wheelchair access)...

Oh - I missed out. Says all sold now

Mattie, I'm not sure what it is like where you are but both my GP and the endocrinologist I eventually saw were scathing about private cortisol tests and especially those from saliva. I had a very bad time with the UK NHS endocrinologist who dismissed the medical journal papers I brought in to...

The cut off date for this workshop is the 15th of December. You have probably already done this but maybe let them know you intend to send a representative or two if not already done so. Thanks for applying. So glad S4ME will be there.

Any group has to fit their definition of a stakeholder to register " National organisations for people who use health and social care services, their families and carers, and the public Healthwatch organisations National organisations that represent health and social care practitioners and...

I've heard that NICE have sent invites out to Stakeholder groups for a "Guideline stakeholder engagement workshop" to be held in January 2018. This is for the CFS/ME Diagnosis and Management Guideline (October 2020) Any members of registered Stakeholder groups here and anyone attending?

Probably because she co-wrote a book with him. Dr Simpson came from NZ and did some talks to local UK ME groups (in the 90's from memory). He distributed blood tubes and got blood samples then. (I met him when he came to one of the London group meetings Lovely man and part of the group at...

I think this may be from 2013. Seen it before somewhere else maybe?

very high temperatures with sweating / delirious - first 15 years or so.

I think from memory that AFME writes these minutes and there can be a battle from different sides trying to control the contents as it's felt AFME leaves out anything they feel uncomfortable with

When we do this we fall into a trap of their making Whenever we address "their" argument we further feed the stereotype of a dangerous, aggressive ME patient. They created this, not because they have a genuine fear of such a person, but to stigmatise all ME patients and to avoid genuine debate...

I'd not go for a blood test but maybe something else like a Tilt Table Test for POTS if he has any signs of dizziness or fainting that could be related. The reason is that none of my ME blood tests done privately are taken seriously by NHS doctors or the benefits people. My TTT Pots test...

That was certainly the fear UK Labour minister's had when they were in power. I had the opportunity to question 2 separate ones about their use of companies and the high appeal rate. Neither considered any sort of punitive action to be desirable in a contract and both felt that fines or even...

https://www.rethink.org/media-centre/2014/11/new-director-of-external-affairs-for-rethink-mental-illness (from 2014 so a clue as to age of article maybe?) "Dow has over two decades of experience of working in the media and with charities. After leaving university, he became a radio journalist...

From their Facebook Page People with M.E. who are too ill or unable to attend our AGM and conference next month will be able to join in with discussions about our children’s services from home. Action for M.E. will be holding virtual roundtable discussions that you can join via Google...

Currently 12:35pm UK Time. If I can find an agenda for the day I'll post it here https://www.actionforme.org.uk/news/watch-our-agm-live-tomorrow-morning-from-1025/ Watch our AGM live tomorrow morning from 10.25 November 15, 2017 Action for M.E.'s Annual General Meeting (AGM) will be held...

Thank you for explaining so well. I choose "Dinner time" as I start to feel better late afternoon but I don't actually need to eat either lunch or dinner to feel better - it's just a coincidence for me I think. As an example I didn't eat any lunch today and am feeling a little sick through not...

How late is "late in the evening" and "dinnertime"?

"The miRNA changes in the two GWI subtypes add to other differences caused by exercise. One subgroup developed jumps in heart rate of over 30 beats when standing up that lasted for two to three days after exercise. Magnetic resonance imaging showed they had smaller brainstems in regions that...