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Push the idea that research into physical treatments is useless " Please note there is a call from patient groups to call a halt to the trials and put money into finding the cause. How much further do the intervention trials get people? You get well and then go down again."

Keep putting off important issues into well into the process and have long discussions on things like health economics first. A good way of exhausting patients and overloading them without getting to what is important "We still don’t have a case definition and haven’t discussed aetiology."

Pretend that patients will have a real choice and use this as a way of explaining away and absolving responsibility in harms and lack of effectiveness. Also blame patients and their "beliefs" if it doesn't work and lie about this being a normal part of medical treatment "Important to remember...

Keep pushing all through the development process that GET and CBT are proven therapy with real benefits "It is noted that there is a danger in changing the name of GET as the wider medical community may not recognise it and the benefits demonstrated in the trials are clear meaning we would be...

Put more power into the hands of the people who sell CBT and GET and let them conspire away from the patients and without being minuted " Therapists in the GDG have been asked to go away to look at various sections. This group meet after the meeting to discuss co-ordinating their work."

Throw in some psychobabble on "positive attitude" "The consensus was that there should be a balance between realism and optimism, recognising that a positive attitude may affect prognosis" and from the section reporting back on CBT "Same concerns about the trials as with GET. A lot of what...

Split the Guideline into sections some of which have very little published research giving the impression that lifestyle factors are important "It was suggested that the guideline be separated into three major chapters. These are general advice (sleep, rest, pacing, work, education, nutrition...

Keep pushing the desired result in the official minutes from an early stage and before treatments for adults have been discussed and agreed (my bold) "As the labour intensive interventions appear to be the most effective (e.g. CBT), the GDG should consider whether less expensive interventions...

Then use poor criteria to define the disease "Discussion Definition of CFS/ME  Broad or narrow definition of CFS/ME? Canadian vrs Oxford. Generally agreed that it should be broad as it is doing no harm if you apply a broad based definition and this may in turn lead to an earlier intervention...

Next way of ensuing that the Guidelines are biased. For a topic only invite those from the Psych lobby "Discussion of points raised during the mornings group work with Children’s Co-optees XXXXX – child psychiatrist XXXXX – chairman of AYME and served on the CMO’s group XXXXX – nurse at GOSH

This is an interesting method of diluting patients input. Given that there were only 3 patients on the GDG. Just something to be aware of next time as a strategy that they may try 3. Group Work GDG split into four pre-allocated Groups. A member of the methodological team was in each to guide...

It's interesting that Mansal Anyward knew Chris Clarke in 2004. I'm wondering when was the first involvement of AFME in PACE and was it all through CC?

Not for me sadly. I put it into reader mode which changed to a black background with the text laid out differently and i made me nearly sick to try and read from there. Was worse for me than the last one. Thanks for the file. Can read it now. Much appreciated!

I'm guessing Rob (the Producer) went to AFME and that was how you ended up with Julia Newton and Emily Beardall. Also Emily works for AFME as a volunteer and I don't personally think she wasn't a good fit because she wasn't actually diagnosed until 4 years ago. Her "campaigning" seems to be only...

Robert, is it possible to have this released in any other format? The MEACTION website is impossible for me to read because of the way in which the page is laid out Thanks for producing this.

Thanks Gary, Quite understand. You are doing a fantastic job and given that you have ME yourself, ever more fantastic. Thank you. Hope that you are given the opportunity one day to get that question of yours answered properly on air.

Thank you Gary for doing an incredible job. Being diagnosed with ME means a very sharp learning curve and I'm sure people here appreciate that. Those of us who have been sick for a long time have lived through the equivalent of a silent war for decades. When there is the chance of publicity we...

But even putting the best possible slant on what she did say - was it actually true. Who are these funders who decided to put their money into cancer and children instead? It certainly wasn't the MRC who loaded their committe with Psych supporters. The Linbury trust who funded the other side...

I've been sending them text messages but nothing mentioned. They don't even seem to be trying to answer the question Gary raised and how got stuck with the new and not severely affected patients and how they feel Terrible so far with only the odd glimmer. They haven't focused it right

Annie (the patient who phoned in) was the first useful voice. Prof Newton touched on some important points but could have done better. She blamed things on infighting. Annie mentioned the abnormal blood flow, then the lobby on behalf of the psych trials. Blamed Wessley for PACE and said...