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  1. shak8

    Electroconvulsive Therapy

    QUOTE="SNT Gatchaman, post: 548359, member: 7967"]Daily Beast: Scientology Is on the Brink of Killing an Entire Medical Industry A life-saving modality. My cousin survived because of treatments, and also a neighbor. The Hollywood Scientology cabal needs legal prosecution over its agenda.
  2. shak8

    How do you recover from the trauma of systemic disbelief?

    "Personality Disorder" was on my medical record from a different health system in 2005! I just discovered it and got my GP to delete it. I guess when the MD got overwhelmed by the patient (me), he gave her a PD diagnosis: Avoidant? No. Paranoid? No, Histrionic? Well, I do love using words. OCD...
  3. shak8

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Yes. Doctors have a sworn duty of care, to try to save the life of someone. They choose, especially for a young person, a treatment that will solve the immediate life-threatening problem, such as TPN (even with the inherent risk of line contamination, sepsis, rehospitalization and even death)...
  4. shak8

    USA: News from #MEAction

    For some reason I'm liking Minnesota a lot these days.
  5. shak8

    Top Ten Tips Palliative Care Clinicians Should Know About Diagnosing, Categorizing, and Addressing Fatigue 2024 Robbins-Welty et al

    I'm happy to see caffeine gets first mention on the list of non-prescription "After Exercise and Behavioral Interventions" treatment options (which include ginseng, yoga, acupuncture, and reflexology.) They may have left out ubiquitously offered Tai chi.
  6. shak8

    Testosterone for women? Ten things you need to know

    Bonus: adds more facial hair. And makes you feel like one of the guys. (I tried it.)
  7. shak8

    Trial Report Low-dose naltrexone for treatment of pain in patients with fibromyalgia: a randomized, double-blind, placebo-controlled, crossover study 2024 Bested+

    I like their use of objective tests (superficial burn on forearm followed by application of capsaicin cream--ouch). And others (see https://cdn-links.lww.com/permalink/pr9/a/pr9_2023_04_25_bested_painreports-d-22-0128_sdc1.pdf)
  8. shak8

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    Hello Julie O, I wonder what your sources are for your statement that nasal medications (I'm assuming you include nasal steroids) can have a "particularly pronounced effect on the brain." I have moderate to severe fibromyalgia and some symptom overlap with ME/CFS x28 yr duration. My use of...
  9. shak8

    Website - Long Covid: The Answers

    https://longcovidtheanswers.com/ for clinicians, and for people suffering from long covid. (Background about the website on TWIV microbe TV by Dr. Daniel Griffin. July 13, 2024, episode 1130. At 13 minutes in to 31 minutes.)
  10. shak8

    Self-guided digital behavioural therapy versus active control for [FM] (PROSPER-FM): a phase 3, multicentre, randomised controlled trial 2024 Arnold+

    I can't wrap my head around exactly what the benefits of ACT are supposed to be and what that means... when the pain continues whether or not you adopt a positive attitude and the exhaustion ensues when you try to up your activity level.
  11. shak8

    Open US: Brain Donor Project

    "Your Brain Holds Secrets" NYTimes, July 6, 2024 (https://www.nytimes.com/2024/07/06/health/brain-donation.html?unlocked_article_code=1.5U0.yG56.AQUoRkz7Ci-L&smid=url-share) More info on procurement: the local medical examiner or pathologist does the extraction of the brain and delivers it...
  12. shak8

    Open US: Brain Donor Project

    The details per their website are that they want the brain harvested (through the back of the neck) within an hour of death. And that a family member or close friend has to call the harvesting team. They can harvest at a mortuary. But at this point, the logistics of this (unless you die at a...
  13. shak8

    Psychocorporal approach to functional somatic disorders 2024 Kachaner, Lemogne and Ranque

    Indeed, the (non) functional-bps folk are catastrophizing around the concept of catastrophization. And besides, the damn word is too long and hard to spell.
  14. shak8

    Psychocorporal approach to functional somatic disorders 2024 Kachaner, Lemogne and Ranque

    I'd be an idiot if I didn't "employ avoidance behaviors." Problem-solving, something our brains evolved to do. (Adaptation to new environments, learning to survive. My body has become a new environment.) So lazy and facile to project blame onto the patient rather than ask oneself to deeply...
  15. shak8

    Navigating the medical system as a beginner with ME

    I would ask people you know in your area which doctors are beloved by their patients (ie good bedside manner, dedication, not arrogant or dismissive). Then, you could, and probably would need to bring in some articles referencing diagnosis, and treatments you wish to try. My family practice...
  16. shak8

    UK:NHS: Feel Good Tennis for Long Covid

    And what would poor Rafa have to say about this tennis defamation.
  17. shak8

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    Ahem. I'd place bets that people get better results from actually being in natural green environments rather than a green light (will make money for someone) therapy, but I may be prejudiced. My medical reporter father hid in a garbage can in the 1950s at a chiropractic convention where red...
  18. shak8

    Whole-Body Photobiomodulation Therapy Propels the Fibromyalgia Patient into the Recomposition Phase: A Reflexive Thematic Analysis 2024 Fitzmaurice+

    Low-level laser therapy, cold laser = photobiomodulation The modality is lacking adequate studies for almost all illnesses/diseases it is touted for. That said, if it were covered by insurance, I might try it for FM upper body areas of pain.
  19. shak8

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    Maybe Dr. Walitt is more careful to be subtle now in voicing his beliefs. Here, a 2016 interview about FM. See minute 7:03 Question: what is fibromyalgia? Walitt says essentially that FM is how people experience suffering in their lives.
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