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My two cents: If I were to express my feelings regularly about my FM condition (the overwhelm, confusion, pain, exhaustion and almost PEM-like incapacity cognitively), I would be even more ignored as nuts than I already am by most family members, and others. The research about PwFM having...

The FDA branch for biologics CBER responded to my email. They can't comment on an investigational new drug (IND) which I assume is Hopebio's currently recruiting clinical trial. FDA's CBER said I can only ask the Sponsor of the study if the trial is conducted under a IND application and ask...

FDA notice to consumers which was valid thru June, 2020 . No approved use of stem cells except from umbilical cord blood. https://www.fda.gov/vaccines-blood-biologics/consumers-biologics/consumer-alert-regenerative-medicine-products-including-stem-cells-and-exosomes Regenerative medicine...

FM as "...medical fad" except that it was characterized since 1904 (as fibrositis).

Alas, SOMA is a drug for sleep. How appropriate. zzzzzzzzzzzzzzz

Interesting or confusing that the FM pain experienced by EDS patients was characterized as joint pain. The definition of the pain in FM is muscle pain.

IQ test the researchers before they start anything.

Moved post NY Times article with behind the scenes look at the National Academy of Sciences and Engineering, etc. and the Sackler (Purdue Pharmacy opioid debacle) influence...

I used to like reading the news online. Lately the US news is a horror show and I don't know if or when it will be over. Why people, except maybe from El Salvador, want to emigrate here is in question.

As the saying in the lab goes, "mice lie and monkeys exaggerate." Though I am grateful for any serious attention paid to my illness. I have no background in the hypothesis and methodology of employing mice in this research topic or any other. I am merely a human subject with FM who took NSAIDS...

Long Covid patients PBS Newshour (USA) April 18, 2023 https://www.pbs.org/newshour/show/long-covid-symptoms-keeping-many-americans-from-returning-to-work

Wonder at the timing of the report of anxiety and depression and mental illness in FM and ME patients in research articles. Do the researchers think that an episode of resolved depression or anxiety two years prior to onset of severe exhaustion or severe muscle pain constitutes an associative...

Author: Shiloh Plaut, and his bio in the journal lists one other publication (acupuncture hypothesis FM). His field is "rheumapsychoneurology (fascial armoring), psychosomatics, fibromyalgia and myofascial pain." For some reason, I don't feel the myofascial aspect is hugely important in pain...

A couple more months, ie heat wave, and I'm ready to cryonic.

I use a split pill of the lowest dose pill of clonazepam to get some sleep when trazodone has failed. Also, when my FM symptoms are extreme, a higher dose does tone things down, providing some sense of sanity possible. So, occasional or intermittent use for me has never resulted in any need...

LEVEL is the company supplying the U of Michigan study drug. Here is the formulation that is supplied to subjects answering the pain interfering with activities as "somewhat" interfering. They will receive the Protab Recover https://levelexperience.com/products/recover/ I can go out and buy...

https://releafapp.com/michigan-research-study/ A psychologist with the U of Michigan is recruiting California-only subjects with either FM, rheumatoid arthritis, or osteo-arthritis of the hip of knee for a study comparing formulations with, as far as I can tell either: 1 to 1 ratio of CBD to...

It's the A.W.E. Method, which stands for: Attention, Wait, Exhale and Expand. (thus the 5 second duration) What makes me happy is laughing at all this. My method is R.L.L. (Read about it. Laugh. Laugh my head off.

If you attribute your Gulf War symptoms to bad diet and exercise, then it's likely you're not a genius or your symptoms are not severe. Or you are easily deluded by wellness articles and approaches. Or suffer from Fake Positivity Syndrome. Or you spent the war in an office job in the US...

Tender points are not used anymore in FM diagnosing. The author is not up on the latest.