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It's too soon to throw in the towel due to impatience or irritation and refuse to distinguish between known symptoms clusters of: FM symptom clusters vs ME symptom clusters vs LC symptom clusters. If symptom clusters are at the moment all that can be detected in most cases of LC, so be it, for...

I don't want to get political here. Maybe AI can leap over my innate prejudice against science getting interested in traditional Chinese medicine for possible new leads, as the Shandong University blurb for international students writes.

Podcast on the 900 for-profit blood plasma donation centers in the US https://www.npr.org/2021/05/14/996921658/blood-money There is a shortage of blood plasma which is essential for treatment of immunodeficiency diseases and in treatment of cancers, etc. The US exports blood plasma globally...

I voted yes. I think in order to get a representative sample (economic and education stratification) you are going to need to offer compensation. Many people are going to think "what's in it for me; isn't my time worth something?" Also, it now customary. There is guidance for IRBs about whether...

I have done twice or more nasal irrigations followed by a steroid nasal spray for non-allergic rhinitis. Used to use tap water until I read about those nasty microbes in ponds that very occasionally get up the noses of the unfortunate swimmer. I boil tap water for a good 5 minutes and...

Referring to her having ME and FM, as you quoted above, she writes "These related conditions upped my chances of Long Covid." I haven't seen published evidence of that. Have you @SNT Gatchaman?

A couple of years of hormone replacement therapy seemed to help me a great deal. This was way way back when the harms of unopposed estrogen replacement had just been published. Thus, just replacement therapy for the worst part of the transition and then off the drugs. (During these transition...

So With Power or Power is a patient recruitment site for clinical trials. Kind of a dating site: you can post your disease and its stage or other nomenclature and "looking for a clinical trial for x disease". Post a photo, even. With Power seems to be a middle man between the patient-potential...

Yesterday had a quadravalent flu jab for the over 65 crowd PLUS a Pfizer covid 2023-24 jab. Won't have two jabs at the same time ever again. Fibro pain is ramped up considerably. I so wish I had some codeine or something stronger. But I'll probably rally later today. Short medley of misery...

In the discussion section (highlighting some limitations of the study), they point out that the population studied in the Veterans Administration are majority male and older individuals.

Invoking Roland Barthes and Camus in adjacent sentences, and Xavier Mariette MD is not even a psychiatrist? So, I suspect that he himself must be suffering from Long Covid which is provoking this confusion of assertions. Which French writer should I quote about that denial?

Thanks @Denise, that was a nuanced article and relieved my concerns about Paxlovid and Medicare.

The announced pricing of a 5 day course of Paxlovid to the commercial market is $1380, announced a few days ago. The price charged to the US government had been about $550. I wonder what the co-pay for the consumer will be. It's unclear at the moment. There will be the usual wrangling by...

Prior classification of subgroups in FM boiled down recently to those patients with prominent anxiety and depression symptoms and those without. Hmm, you could classify the human race as a whole that way. But in any case, unless there is a research pathway regarding the relationship in the CNS...

251 Spanish FM patients, of which 21% are disabled by FM. Pain is not something the brain interprets positively. Chronic pain has no purpose. The brain doesn't really "accept" chronic pain. And psychological "surrender" is not effective. Drugs that knock the pain off the awareness map are...

My close reading of the major researchers of FM is that the US-FDA-approved drugs for FM offer at most 30% pain reduction to about 1/3 or fewer patients. (These drugs can have significant side effects and one drug is quite hellish to withdraw from.) Edited: I lack confidence that this...

The drug used in the study is the trademarked Brainmax, a product of the Russian company Promomed. https://promomed.ru/en/catalog/original/breynmaks/ Love the bit "Sources of financing" at the end of the research report that sources of financing included help from Promomed, but that it did not...

I've gotten sick with respiratory viruses a lot this year (not covid, that I know of) though I routinely wear an N95 whenever I go indoors. A few exceptions though (friends or neighbors I let inside without mask, or me unmasked). I may have used the same N95 too many times for the effectiveness...

This non-profit's foundation tax filing: https://www.causeiq.com/organizations/foundation-for-total-recovery,473917291/#personnel shows that the personnel on the tax filing are associated with this Kaplan Clinic (Integrative Medicine), McLean, Virginia. https://kaplanclinic.com

The money saved from paying silly people employed in academe (reference the above and so many other 'research' reports) would be better spent on working our carbon load down, or improving the lives of the not as fortunate.