Search results

  1. shak8

    Personal experience of using cumin to treat PEM

    There's some heavy metal issues with some spices and brands as outlined in this article: https://www.consumerreports.org/health/food-safety/your-herbs-and-spices-might-contain-arsenic-cadmium-and-lead-a6246621494/ Generally the more expensive brands of ground cumin are safe.
  2. shak8

    Hypothesis Fibrinaloid Microclots and Atrial Fibrillation, 2024, Kell, Lip, Pretorius

    This focus on obesity as "causal or confounding" for FM is a bit disingenuous. References listed in the paper about FM and obesity are many and include one that states (International Rheumatology) that 40% of FM patients are obese (and 30% are overweight). Not sure which country or countries...
  3. shak8

    Open impact of chronic fatigue syndrome CFS/ ME on identity construction among young adults

    Qualitative research by PhD nurse researchers of FM subjects was the only repository of the personal reactions of PwFM to their illness and its effects on their lives that I've found, outside of online support group members. That a health profession took the time to investigate the effects of...
  4. shak8

    UK: People with ongoing Long Covid symptoms unable to donate blood (as of July 2023)

    Higher levels of fragment RNA of the covid-19 virus in Long Covid patients in China. Still is unknown if these fragments are a causative factor in the development of LC symptoms. Also unknown whether these reservoirs contain replication-competent virus. Per Dr. Daniel Griffin TWIV approx 28...
  5. shak8

    Trial Report Chronic nonspecific multiple-sites pain [CNMSP] of unknown etiology: Biopsychosocial method of evaluation for the primary care level, 2024, Goel

    Quite indicative of the writers' confusion. Not only bypassing the years of prior research into FM and ME which point to a molecular etiology (as yet unknown). But they seem to throw all the acronyms they are confused by into the air like so much spaghetti.
  6. shak8

    Open The Long COVID-19 Wearable Device Study, Scripps Translational Science Institute, California

    Merged thread Eric Topol at Scripps is involved. Recruiting USA residents, only. https://longcovid.scripps.edu/?ref=studyme
  7. shak8

    Protocol Efficacy of patient education and duloxetine, alone and in combination, for patients with multisystem functional somatic disorder:... 2024 Jespersen+

    Sounds like false repurposing the FDA-approved for FM drug duloxetine. According to Daniel Clauw, MD, an expert in FM research, these FDA-approved FM drugs: duloxetine, pregabalin, and milnacipran (solo or in some combination) are for the most part ineffective and/or have overwhelming side...
  8. shak8

    How can you tell if a supplement brand is good one?

    In the USA, if supplements have the certified USP label, then at least the ingredients should be what the label says and from standard reputable sources (whatever that means these days). Mostly that means the major, best-selling brands have the USP designation. Here's the USP.org site...
  9. shak8

    USA Minnesota - Dr Tam

    In the article above the Minnesota ME/CFS doctor Dr. Tam is a big proponent of the Perrin Technique (https://theperrintechnique.com) A type of of miraculous massage, apparently.
  10. shak8

    Ivermectin - does it worsen symptoms?

    I was prescribed it for my non-specific autoimmune disorder/fibromyalgia and took it for three months twenty years ago. Felt no side effects nor anything at all, no improvement of pain or fatigue.
  11. shak8

    To Live Past 100, Mangia a Lot Less: Italian Expert’s Ideas on Aging

    What? Will Montalbano TV series have all the deliciously serious eating scenes edited out? And what about the obese pathologist who, if sitting down, has a plate full of pastries on his desk. And the detective takes his seaside, seafood restaurant meals as seriously as his murders. No talking...
  12. shak8

    Efficacy of aquatic vs land-based therapy for pain management in women with fibromyalgia: a randomised controlled trial 2024 Rivas Neira et al

    I find any group exercise intervention for FM problematic pain-wise. I couldn't walk through chest-high water without inducing later pain in upper body region. Can't move my arms much, no lifting and the weight of the water is a deceptive resistance. Not sure what I would do in the...
  13. shak8

    Applying the Somatic Symptom Disorder Diagnosis to Individuals with Fibromyalgia: Strengths and Limitations 2024 LoBrutto et al

    The authors of the review study have not published any previous work indicating any clinical exposure to FM patients. They are all psychologists at a university. They do urge caution using the somatic symptom disorder for FM patients (in the DSM-V) because of potential harm. But it is up to...
  14. shak8

    Identification of unique genomic signatures in patients with fibromyalgia and chronic pain 2024 Mohapatra et al

    The subjects with FM that were selected in the above study were limited by having to test positive to the researchers' own prior cytokine assay of peripheral RBCs in FM patients, published in 2012 here: https://bmcclinpathol.biomedcentral.com/articles/10.1186/1472-6890-12-25 As in the...
  15. shak8

    Rice cookers?

    Rice: I used to love rice (and had a rice cooker), but rice is carby and too tempting to go beyond the my 25 gram meal allotment. I'd rather indulge in a half a cup of stuffed pasta. Laundry detergent: I mostly hand wash using Ivory bar soap, dish soap, and ammonia for stains. California...
  16. shak8

    Trial Report Idiopathic intracranial hypertension with ultrasound in fibromyalgia: Relation with function, central sensitization, & neuropathic pain, 2024, Ketenci

    Here is the background of optic nerve sheath ultrasound. It is correlated with intracranial pressure (if done right). https://www.ncbi.nlm.nih.gov/books/NBK554479/ Upper limit normal for adults is 5.0mm average (ultra sound optic nerve sheath measurement) 54 out of 80 FM patients were in the...
  17. shak8

    I was young and fit, and suddenly too exhausted to get out of bed. (Washington Post, Jan.28, 2024)

    Link: https://wapo.st/3w0qOJ0 Here one of the best known FM clinician-researchers diagnosed the writer with FM and chronic fatigue syndrome. Besides meds (muscle relaxant flexeril, anti-depressant Wellbutrin, steroid florinef) recommended CBT and graded exercise therapy. Ahem.
Back
Top Bottom