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    Peter White (ed.) 2005, Biopsychosocial Medicine: An integrated approach to understanding illness

    This x 100.
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    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    To me this should be an inherent part of their remit. If not challenged via bodies which purport to support and represent the patient group then the narrative simply continues and the endless loop goes on with revisionist name changes. If after all these years they do not have persons who can...
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    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    This is where critical analysis and statements from charities is needed. It is not difficult when faced with studies this bad, but it does not seem to happen. I would love to be proved wrong on this occasion especially.
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    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    This
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    BMJ Management of post-acute Covid-19 in primary care, 2020, Greenhalgh et al

    Lower blood oxygen in PEM is a feature here. Given that it's not an automatic thing to look at it would be interesting to see if this is unusual or not .
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    BMJ Management of post-acute Covid-19 in primary care, 2020, Greenhalgh et al

    Don't be silly Caroline. If you can't get referrals for comorbid symptoms because that would encourage unhelpful beliefs, why on earth would you be given something to objectively measure said symptoms ?
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    ME Epidemiology - prevalence and peak ages of onset

    yes, I would agree with remission v recovered- an area that needs some serious research too as there are numerous anecdotes of teenagers " recovering" only to become ill again in later life - it may be valuable to unpick what instigated recurrance - viral/ environmental/etc as it may hold clues...
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    ME Epidemiology - prevalence and peak ages of onset

    I would guard against prevalence rates being uniformly distributed throughout the population. Given that we know certain age ranges have spikes, it may be that these cohorts have greater incidence. Discounting Crawley et al rates of c 2-2.5 % due to general lack of discrimination in diagnosis...
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    BMJ Management of post-acute Covid-19 in primary care, 2020, Greenhalgh et al

    Alternative universe
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    The biology of coronavirus COVID-19 - including research and treatments

    Interesting research re role of misfolded proteins https://phys.org/news/2020-08-protein-sars-cov-rapidly-cells.amp?__twitter_impression=true
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    New Video: The PACE trial - Politics

    Simply brilliant again .
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    UK - NHS England online tool and clinics for long Covid.

    :banghead::banghead::banghead:
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    Exercise alters brain activation in Gulf War Illness and ME/CFS. Washington et al. 2020

    mmm - there is a therapy based on this i think - is this product placement?
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    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    And this gets published ....
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    No Benefit of 3 Commonly Used Medications in MS Fatigue

    This
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    No Usually NICE is followed , but not necessarily. Separate health system.
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    Dr Myhill unable to prescribe

    This is sad. My aunt is under Myhill who prescribed sleep meds which her GP would not to provide some stability. Adrenal / thyroid meds and magnesium injections fir a while have also helped. ( they helped enormously with night time heart palpitations) She is still severely affected, but not...
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    United Lincolnshire Hospitals NHS Trust is looking to employ a Spiritual Healer / Reiki Therapist Aug 2020

    Cancer generally has many " supportive " options. One of my cousins used acupuncture and massage during her treatment for cancer. I don't know how this was funded though.
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    Consultant post for N Ireland

    More than here, we have +20,000 estimated( and has been this number for years) and 1 specialist nurse in 1 health authority. Well done NI !
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    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Could charities/ APPG group request data ? Though not researchers it would surely set the wrong tone to refuse such groups? Or am I being incredibly naive on low sleep? ETA spelling
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