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    United Kingdom: Scotland NHS Lothian ME/CFS clinic

    Given Afme publicly confirmed that this proposed service did not have their support , and the tweet was removed, did you manage to find out anything about this?
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    Audio distraction: podcasts, audio books, radio on demand

    My daughter is currently enjoying my Scribd subscription ( I opened an account a couple of years ago to access a few technical papers before I found Sci-hub). She thinks it's brilliant as there is no limit to how many things you can access per month, you don't have to wait for some audio and...
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    Patience

    I wish I knew. I have never had any , and have less as i age! I
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    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    By physicians for physicians to garner a particular response ? Or will the expanded answers such as @Trish ' s be significant enough to count for something
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    Coronavirus - worldwide spread and control

    How does a less deadly strain affect the long Covid phenomenon when many were not seriously affected by the initial viral infection .
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    CBT for ME that is accepted by the community.

    Yes, this is very true. I know of a couple of therapists who worked at CAMHS and at that time it was largely a one trick pony with a set script. Many kids also worked out what they should say to " please" the therapist , especially if personalities were an issue, so overall efficacy was...
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    CBT for ME that is accepted by the community.

    This
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    CBT for ME that is accepted by the community.

    Sadly idiots proliferate
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    Vascular ATP‐sensitive K+ channels support maximal aerobic capacity and critical speed via convective and diffusive O2 transport, 2020, Colburn et al

    Nothing is ever easy is it ? An ever moving goalposts. Given that potassium is key for cellular pumps , how does the finding affect sodium?
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    The biology of coronavirus COVID-19 - including research and treatments

    Hmm and what about the ones who didn't go to hospital - a lot of the " longhaulers" appear to those who did not go to hospital at all
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    Vascular ATP‐sensitive K+ channels support maximal aerobic capacity and critical speed via convective and diffusive O2 transport, 2020, Colburn et al

    Potassium seems to be the element that tanks in refeeding syndrome. On the other place there were numerous threads on potassium deficiency after starting a new supplement. Folate (and methylated Bs) seemed to be especially problematic. V8 juice and coconut water seem to be good at bringing...
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Very interesting paper linked to this tweet
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I would prefer a decent job with the " benefits" that comes from this. Not to exist in a stigmatised minority, fighting for enough to survive on , and having to counter a narrative of disbelief. Rather than " wife swap" , perhaps we should have " shrink/ therapist/ medic swap, with the...
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    Coronavirus - worldwide spread and control

    What a complete shitshow. Competence and confidence zilch . Thread worth a read.
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    COVID-19 is viewed as severe as Tumor and HIV; Perceptions towards Covid- 19 (includes CFS comparison), 2020, Menebo - preprint

    It would be good to have someone comment though. Nancy Klimas ?
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    Brand new here, hashimoto, poly cystic ovary syndrome and ME

    Welcome to the forum @Aquarian1 . The clustering of conditions does seem to be a " thing" in chronic illness- I hope that engaging here will help us all gain a better understanding. I hope that you find friendship, solace and stimulation in equal measure.
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