Search results

  1. A

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Can someone forward to Tymes Trust?
  2. A

    Association between quadrivalent human papillomavirus vaccination and selected syndromes with autonomic dysfunction: Hviid et al. 2020

    i will have to read this later. There are a number of girls with primarily OI issues following HPV, but many with CFS too. It's always difficult to know if adverse events are statistically signiifcant or not. The HPV vaccine, has I believe, been modified since first usage. ( i can't remember...
  3. A

    Woken by horrible bone pain (?) in leg last night

    Sorry to derail thread . We have found this brand of vitamins to be good as they have little/ no additives and come in eco friendly packaging. https://maddiet.co/product/vegan-vitamin-d3/
  4. A

    Psychologically informed physiotherapy as part of a multidisciplinary rehabilitation program for children & adolescents with [FND], 2020, Kasia et al

    Kids. The amount of harm this kind of thing can do should be the subject of a study. :banghead:
  5. A

    #MEAction Scotland News

    YOUTUBE VIDEO STARTS AT 41 MINS
  6. A

    #MEAction Scotland News

    The petition was continued and a second hearing was yesterday - reframed to bring in potential for ME after COVID Parliamentary TV link - petition hearing starts at 10:12:14
  7. A

    Coronavirus - worldwide spread and control

    sorry for the " like". I can't imagine how it feels to be in Florida - please stay safe.
  8. A

    Vitamin D receptor is overexpressed in the duodenum of patients with irritable bowel syndrome, 2020, Miura et al

    Would this also affect SODase synthesis and therefore antioxidant levels?
  9. A

    Public Each human gut has a viral fingerprint

    Interesting research from Ohio, which may or may not have relevance for ME/ CFS. https://phys.org/news/2020-08-human-gut-viral-fingerprint.html
  10. A

    NICE ME/CFS draft guideline - publication dates and delays 2020

    From Twitter
  11. A

    Coronavirus - worldwide spread and control

    My brother in law and family live in Sweden . Initially they thought that the herd immunity approach made sense ( as though it was a cold) . Life has been more normal in that schools and nurseries have been kept open ( both their children are under 10) , and shops, transport continued . They...
  12. A

    Discriminatory cytokine profiles predict muscle function, fatigue and cognitive function in patients with ME/CFS. McArdle et al. 2020

    Do we know the ratio of male / females tested? Asking as some studies have suggested that females utilize protein differently - might this not affect muscles and perhaps indicate catabolization ?
  13. A

    Coronavirus - worldwide spread and control

    So if I was a BAME parent ( or any parent ) with diabetes/asthma/cardiovascular issues I should wave my child off without worry. Schools have always been great incubators - where is the plan B, or at least some form of online learning for those families with high risk? There are even providers...
  14. A

    Esther Crawley

    Thanks - I wondered if there was a big media spoon being stirred...glad that it's not
  15. A

    Activity measurement in pediatric chronic fatigue syndrome, 2020, Jason et al

    I know of some children ( not all ME) who told the authority figure what they thought they wanted to hear, either to make them go away ( psychology and teachers seen to score high in this , bit may be age dependent ) , or to please In an asymmetric power balance it is not uncommon.
  16. A

    Validation of the Severity of ME/CFS by Other Measures than History: Activity Bracelet, CPET, SF-36. van Campen et al, 2020

    This
  17. A

    United Kingdom: Scotland NHS Lothian ME/CFS clinic

    Thank you. ME Action are looking into this too. The weird thing is that if it is historic , why would it be teeeted now ?
  18. A

    Esther Crawley

    Can I ask why @Sly Saint posted yesterday - is there a media revisiting of this? I expect some form of media intervention to try and control the narrative for both NICE ( as can also be seen by the flurry of published papers) and now long COVID which could expose the paucity of scientific...
  19. A

    Coronavirus - worldwide spread and control

    Scottish schools are back
  20. A

    United Kingdom: Scotland NHS Lothian ME/CFS clinic

    Posting this link here , but can be moved.Apologies, I am in a rush for an appointment . Wessley ' s role in the CFS / ME debacle in Scotland, which seems to have had an impact Probably similar to come re NICE https://jnnp.bmj.com/content/85/2/214
Back
Top Bottom