Interesting.
We did the ATP profile test by Acumen.
I know that it has not been replicated.
However.
It was spooky for its correlation with severity.
It also looked at translocator function ( atp out and atp in)
My daughter was chucking ATP out in bucket loads
With symptoms it can be difficult to sort out ME relevance given the huge heterogenity.
My daughter has had some symptoms which are worsening which prompts a reconsideration.
There is a decline , and it may be that this is simply part and parcel of that, or something that requires medical...
Care of face masks article
https://www.irishtimes.com/life-and-style/health-family/treat-your-face-mask-like-your-underwear-how-to-care-for-your-reusable-face-covering-1.4350568?mode=amp
The main problem we have found is that CFS is conflated with CF. It therefore becomes " fatigue".
It has suited BPS brigade to promote the conflation - in paediatrics PEM has until very recently been defined only as "fatigue" ( and for some studies this still pertains) .
In many, many papers...
Redefinition of recovery.
Given the failure of treatment methods this was guaranteed at some point. This places it within the psychological/ psychiatric normal definitions.
I wonder how young people feel about this and when exactly during the course of " treatment" this version is presented...
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