Search results

  1. A

    The PACE trial video series by A Broken Battery

    Psychology seems to assume that data is linear.
  2. A

    Cholesterol

    check out fat emperor who has some good videos on this, also on adipose tissue signalling (or how you can be fat and metabolically healthy) https://thefatemperor.com/whats-the-real-story-with-cholesterol-and-heart-disease-podcast-ep9/ ETA 2 different videos. First one informative on ll/ hdl/...
  3. A

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Such quality investigative journalism. ( sarcasm)
  4. A

    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    We did the ATP profiles test. It correlated spookily precisely with functional ability at the time. I haven't read the paper yet - too late now- but the test also looked at other cofactor levels - carnitine/ glutathione,/ niacin / sodase . The issue with chucking a whole lot of supplements...
  5. A

    Can You Reshape Your Brain's Response To Pain? NPR article, June 10, 2019

    Adverse childhood experience. Coyne has blogged a good critique ETA @rvallee already explained. What was an educational theory has morphed into a predictive tool
  6. A

    Evaluation of spin in abstracts of papers in psychiatry and psychology journals, 2019, Jellison et al

    Re amount of churned out papers this year If only it represented a last gasp. I suspect There's so much probably as it's been timed for NICE deliberation. Having recently attended a SEN evening, psychological education seems to be the area to focus. Whilst there were some positive aspects...
  7. A

    Can You Reshape Your Brain's Response To Pain? NPR article, June 10, 2019

    Sadly ACEs are currently very trendy and getting everywhere.
  8. A

    Depressive symptoms at age 9–13 and chronic disabling fatigue at age 16: A longitudinal study -Aug 2019 Collin,Loades, Crawley et al

    A common issue with paediatric research. Sadly here even with a physician diagnosis it would count for little .
  9. A

    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    At school they use " beer glasses" to mimic drunkenness, in first year as part of personal social education, and pupils literally bounce off the walls . If only there was a modulatable ME suit that could be part of medical education
  10. A

    ME Association guest blog: "My daughter and the pervasive dangers of PACE in paediatric M.E." by Adam Johnson

    Or nothing will be contemplated till they are dead - viz Jimmy Savill
  11. A

    Relationship satisfaction, communication self-efficacy, and chronic fatigue syndrome-related fatigue, 2019, Milrad et al

    Given the car crash of the genetics study that also bore her name earlier this year she may be too busy to attend to detail? Concerning given it's not the first paper to suffer from GIGO
  12. A

    Psychiatric conference in Norway nov. 2019 themed "Stressology" (Wyller among lecturers)

    Many people with ME and other chronic conditions in and around Edinburgh are having FND added to their diagnoses and records. Sadly many do not know what this is - functional creates a false sense of security for patients. It makes things seem " real".
  13. A

    PENE crash and muscle pain

    I can relate to the idea of tension/ tenseness My daughter's muscles are generally tight- emotional/ sensory overstimulation can make some feel rock hard. She never fes as though there us a complete release if the tension. Her descriptions are It's like you yawn, your jaw extends but you...
  14. A

    Associations between gabapentinoids and suicidal behaviour, unintentional overdoses, injuries, road traffic incidents, etc., 2019, Molero et al.

    Interesting re age profile. When I queried the use of amitriptyline in children ( can be as young as 10 to my knowledge) and asked for evidence re impact on developing brain and efficacy with paediatrician there was an awkward pause. I suspect a lot of the drug interventions for those...
  15. A

    The Scientist article - brain drains via lymphatic system at base of skull

    Mouse model but intriguing. My daughter has lymph issues often ( it doesn't t really go away, just seems to ramp up and down) Could this be one of the causes of pain in this area? https://www.the-scientist.com/news-opinion/brains-fluid-drains-via-lymphatic-vessels-at-the-base-of-the-skull-66193
  16. A

    UK - The Young ME Sufferers (TYMES) Trust

    I expect EC is an excellent teacher. It's s a case of " the king is dead, long live the king"
  17. A

    Factors associated with work status in chronic fatigue syndrome (2019) S A M Stevelink, N T Fear, M Hotopf, T Chalder

    It's preparing for more privatised spin offs from NHS in lieu of direct provision. How many private companies currently provide CBT therapy, who has a financial stake in them, and where do they operate? The fact that you don't need robust evidence has done nothing to halt the IAPT roll...
Back
Top Bottom