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    News from Scandinavia

    The difference that listening and validation makes.
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    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Career preservation
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    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    If selected on abstracts only ....
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    Acupuncture and other traditional Chinese medicine news and discussion thread

    I know a few that acupuncture has helped for symptom relief. Sane with Perrin technique. It does trend to floor you immmediately afterwards though for either.
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    Who is Simon Wessely?

    Aluminium poisoning
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    Action for M.E. 2019 AGM and conference 15th October 2019

    remote access @Action for M.E. to improve inclusiveness? Given that many members will struggle to attend perhaps an option to livestream?
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    SCOPE : Q&A about chronic fatigue or Myalgic Encephalomyelitis (ME/CFS) with Dr Charles Shepherd

    this
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    ME Association guest blog: "My daughter and the pervasive dangers of PACE in paediatric M.E." by Adam Johnson

    Similar to how wheelchairs are portrayed by Hollywood. If you get up and walk from a wheelchair you are more likely to be the villain
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    Adolescent recovery

    Given the recent paper by Rowe suggesting 68% with an overlap on nearly recovered perhaps suggesting 55%+, over 6 years can @Action for M.E. @Russell Fleming push to have guidance corrected? Nothing like 80% over 2 years ...
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    The Mind-Body Syndrome Study (2019) Maroti et al

    God help anyone who is autistic and ill.
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    Long-term outcomes of functional neurological disorder in children, 2019, Stone, Forsyth et al

    Hmmm. I know of one young woman who had horrendous experience from age 9 with ME. Having neurological symptoms she has seen neurologists, but made no progress, other than to be traumatised. She has recently discovered she is double homogenous for MTHFR , amongst others and is making...
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    Individual differences in social network size linked to nucleus accumbens and hippocampal volumes in [FND]: A pilot study, 2019, Perez et al

    The newly learned acronym for the week seems appropriate AYFKM
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    Eye movement deficits in ME/CFS and sleep deprivation

    Interestingly blurred peripheral vision and blurry lateral tracking is a side effect of many anti depressants.
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    Easy sources of protein

    Caravan fridge?
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    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    From a glance at the post Chandler fatigue scale continues to roll out more ambiguity? CSS, somatisation, sickness behaviour. Is there a way to get FND in there too?
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    Activity baseline vs activity ceiling, why concepts and language matter

    GET is not a recommendation for the severely affected. The 10% increase is quoted in paediatrics as well and uses NICE as justification. It simply dosn't work like that, and belies a lack of understanding ( its also a bit like flat rate % and APR%- what is the 10% an increment of and when does...
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    Cholesterol

    The aspect that few doctors divulge is that of all cause mortality. Typically the effect of side effects / overall efficacy is not divulged. Statins don't do well on this. Being female is also an impact.
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    Easy sources of protein

    Boiled eggs - 6g protein each for large size. Get yourself a klean kanteen or similar drinks bottle / flask - klean kanteen have a variety of types with lids you can buy separately and keep things hot/ cold for 12 hours.and spares are available - lids/ seals etc . Pricey but brilliant...
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    Activity baseline vs activity ceiling, why concepts and language matter

    I would be rubbish at it - I could never resist a double dare
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    The PACE trial video series by A Broken Battery

    Graham. I wish you had been my maths teacher. You have a wonderful talent for explaining things simply and coherently.
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