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    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    Sadly too great a distance for me, but I will be sure to catch the filmed version when available. Many thanks @dave30th for keeping up pressure for change.
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    UK Independent: 'The NHS is underprepared for a no-deal Brexit – and I am one of the thousands that might die as a result', 2019

    Interesting article https://www.bmj.com/content/366/bmj.l5300
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    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

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    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    The penny may have dropped re how many policies, careers and egos would be affected if bias is addressed. .......
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    Trial By Error: Lead Author of Cochrane’s New Bias Guideline is LP Study Co-Author

    You cannot make this stuff up.
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    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    I have significant concerns re evidence base for children, as much paediatric research , as we know, is of poor quality with a mixed cohort and from a small group of mutually reinforcing researchers. I know of little biomedical research for this group : tymes trust did fund muscle research at...
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    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    This is particularly problematic for children.
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    Basic questions about metabolism

    I would agree Barry. It's s energy delivery. The difference between power and energy - as only an engineer can appreciate.
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    Basic questions about metabolism

    It's what you eat. All calories are not equal Given issues with glycolysis, carbs don't seem a good idea , but finding the balance can be difficult. Low GI and increase in protein ( females from research seem.liklier to be using aminos for fuel) may help. Keto didn't work for us - seem to...
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    MUS services in UK and other MUS related issues

    Still 10% above the paper by Scott?
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    Researcher Interactions Question collection thread for S4ME Q&A with Dr Karl Morten, University of Oxford, Sept 2019

    What is the inhibitor ( and is it left in solution overnight and if so what effect does this have over a prolonged timescale. - seems like a long time for someone with not much specific scientific knowledge)
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    Microstructural fronto-striatal and temporo-insular alterations are associated with fatigue in patients with multiple sclerosis 2019 Palotai et al

    Does this relate to the brain areas Montoya advised were affected?
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    Bristol CFS/ME clinic researching patients' problems with Chalder Fatigue Questionnaire

    When there are different, more applicable scales in existence.... Are egos really so huge?
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    Is ME a metabolic problem or a signalling problem?

    This is an interesting thread https://forums.phoenixrising.me/threads/the-rbc-nox-hypothesis.77228/#post-2222454 Necessay8 had an interesting thread a couple of years ago re purinergic signalling. I'm ll post if I can find it.
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    US NIH: Responses to NANDS Request for Information: How to advance ME/CFS Research

    The effect of exertion is unpleasant. It's not immediate. Here it starts next day but 48hours sees it peaking - the descent time varies. Energy impact is complex as it is not a constant, even for routine things : I think at certain life stages ( puberty / menopause / if a child simply growing)...
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    A systematic review of cytokines in CFS/ME/SEID (2019) Corbitt et al

    Fatigue being labelled as the primary symptom is the issue that has helped muddy the waters for years. Its fatiguability not fatigue.
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    Researcher Interactions Question collection thread for S4ME Q&A with Dr Karl Morten, University of Oxford, Sept 2019

    Graph reminds me of something but upside down. Most of graphs I relate a similar but inverted shape to are either climate systems/ crop CO2 / cell cycle . I think it's an inverse of photsynthesis CO2 for C4 plants, which have a different response to C3 due to rate limiting effect of CO2 -...
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    ME Association Monthly Survey, April 2019: Co-morbidities

    In an ideal world co morbidities would be investigated,however getting a referral to facilitate a diagnosis would be a result in itself for some.
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    Organ donation and blood donation

    in the thread it states that there has never been a ban on organ donation from pwME - it is based on the condition of the organ. Is this just a lack of joined up thinking again? I would agree @Iansbergen - seems irresponsible to me too @Jonathan Edwards - any comments?
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    Organ donation and blood donation

    From Twitter this morning It strikes me as a little strange?
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