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  1. Alvin

    OMF ME/CFS Working Group Meeting - September 26 - 28, 2018

    I see, its not available yet afaik but you can link to the livestream here and indicate a time to scroll to
  2. Alvin

    OMF ME/CFS Working Group Meeting - September 26 - 28, 2018

    There is no need, download it here, its 7.1GB http://pd vod.new.livestream.com/events/00000000007ec67b/cb7b1b79-beb9-44f8-a3a6-38a49863d19f_2128.mp4
  3. Alvin

    Applicants needed for Columbia ME/CFS Research Center Community Advisory Committee

    I was thinking about this yesterday but didn't have the cognitive fortitude to look it up so thanks for bumping this thread :) I have also heard nothing and they never replied to my question that i had sent before applying. All dark all round :(
  4. Alvin

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    @Webdog if we could put together teams to do this sort of thing which you have the experience in would you be willing to train them?
  5. Alvin

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    I completely understand :hug: I think what we need are teams that can do this, when a new issue is discovered then contact and educate them Very nice reference material :) Is this thread something @dave30th might be interested in writing an article about? I don't twitter but many forum members...
  6. Alvin

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Very nice :) Is anyone willing to take this on? @Webdog does stuff like this but is probably swamped
  7. Alvin

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    I would (if i had the energy :( )
  8. Alvin

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    Because they believe the lies or are afraid to confront the BPSers; this means that the patient charities harm rather than help patients.
  9. Alvin

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Interesting, thanks for looking this up. Under these guidelines they should be able to spew this crap, but if an anti vaxxer tried to provide CME credits would the state of NY have a problem with it?
  10. Alvin

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    NY state officially recognizes ME as a physical disease, they released guidance that was sent to all docs was it earlier this year? Is there an authority who can accept a complaint that they are giving credits for something that goes against settled state policy?
  11. Alvin

    Top reasons ME research is an opportunity

    My new recently graduated from medical school doctor had learned nothing about ME in medical school :emoji_face_palm: Perhaps thats better then learning its psychosomatic but its completely useless.
  12. Alvin

    Ketogenic diet

    Merged thread For those who may want to try a keto diet since its been mentioned a few times i came across this link I am not recommending trying the diet, just that i happened across this article and it may help someone who already decided to try it...
  13. Alvin

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    This is why we should not fall for empty gestures and slightly less playing both sides. If they want to get our respect and trust they should have to earn it piece by piece. They are not on our side, they are a thorn in our paws who play both sides and we should deal with them on that basis.
  14. Alvin

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    If free speech is extremism then he is in the wrong business. He is breaking no law by telling lies and we have the right to petition an institution to not host lies. By his logic if anyone in authority has something to say or wants to harm people then public opposition it is essentially...
  15. Alvin

    Top reasons ME research is an opportunity

    So my guess is you need to convince them that ME exists (use their own data plus other data), its been maligned by the psychosomatic camp who publishes flawed research (some examples and/or a David Tuller open letter/takedown(s) would probably be good to have on hand), that real research is...
  16. Alvin

    Doctors are surprisingly bad at reading lab results. It’s putting us all at risk.

    Indeed, someone i know has low blood iron and major symptoms coming from it. Just approaching the low end of the range satisfies the doctor who says no more treatment is needed. They still have the major symptoms, just slightly less :emoji_face_palm:
  17. Alvin

    Doctors are surprisingly bad at reading lab results. It’s putting us all at risk.

    https://www.washingtonpost.com/news/posteverything/wp/2018/10/05/feature/doctors-are-surprisingly-bad-at-reading-lab-results-its-putting-us-all-at-risk/?utm_term=.1281be16ce03
  18. Alvin

    Stanford Community Symposium 2018: Fluge

    If anyone wants to download it as a full talk here is the link http://pd vod.new.livestream.com/events/00000000007ec67b/cb7b1b79-beb9-44f8-a3a6-38a49863d19f_2128.mp4 It is 7.1GB
  19. Alvin

    Proprioception Dexterity Balance

    Well if the blood level goes up with the supplements then the injection will still make it higher still so you are absorbing the supplement. But why are you not retaining it. You might be right that its genetic, but high blood levels that the body can't store and maybe not properly utilize is...
  20. Alvin

    Top reasons ME research is an opportunity

    What is it they are looking for, specific projects to study or reasons to allocate more money or something else?
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