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  1. Alvin

    Cochrane ME/CFS GET review temporarily withdrawn

    Blaming patients for being anti science and malicious and stupid Its about the playbook for reality deniers and it usually works out for them. Eventually the tide turns...
  2. Alvin

    Episode of Australian current affairs program, “Insight”, on ME/CFS on October 16, 2018

    Merged thread https://www.smh.com.au/lifestyle/health-and-wellness/i-m-33-and-have-been-living-in-aged-care-for-eight-years-20181016-p509ul.html
  3. Alvin

    Withdrawal from publication of 'Traditional Chinese medicinal herbs for the treatment of idiopathic chronic fatigue and chronic fatigue syndrome'

    Is this being used as a guise to remove anything except CBT/GET or is it actually progress where they realize we have a real condition. I would be shocked if its because they realize we have an immune related condition. Also just because research is old does not man its bad, there is a human...
  4. Alvin

    News from NIH: ME/CFS Telebriefing- October 23, 2018

    I understand, its a general question to anyone who knows Have you participated on any of these calls before?
  5. Alvin

    News from NIH: ME/CFS Telebriefing- October 23, 2018

    I registered and logged in and only see this So we have to e-mail and request to join the call? So what was the logging in about?
  6. Alvin

    2019 International Symposium on Current Issues and Controversies in Psychiatry - Treatment Resistance

    They are not interested in knowing that treatment resistance is because the treatments are based on flawed theories which is why they work poorly. If the real cause of ulcers had not been determined not so long ago they would be talking about its treatment resistance...
  7. Alvin

    CDC Roundtable, Multisite Study and Dr. Klimas’ Attempt to Permanently “Reset” Chronic Fatigue Syndrome (ME/CFS)

    I can't defend the guy because i know little about him or what he does. I do recall reading somewhere that he said ME and CFS are different things, which makes little sense but without an explanation of what that means i have no idea what to say though i don't think this is correct I have an...
  8. Alvin

    CDC Roundtable, Multisite Study and Dr. Klimas’ Attempt to Permanently “Reset” Chronic Fatigue Syndrome (ME/CFS)

    There is a new one from earlier this year or late last year, it apparently caught the interest of a research team who decided to do a study based on its content using QEEG which i participated in a few months back (results late next year).
  9. Alvin

    CDC Roundtable, Multisite Study and Dr. Klimas’ Attempt to Permanently “Reset” Chronic Fatigue Syndrome (ME/CFS)

    He has written a book. I have not read it so i can't attest to its content or accuracy. I had a spect scan done by a dementia neurologist a few years back. I even got a copy of the images though they mean nothing to my untrained eye.
  10. Alvin

    News from NIH: ME/CFS Telebriefing- October 23, 2018

    Who are these people and is it something where we tell them what we think or ask questions or are they just broadcasting their thoughts like a podcast?
  11. Alvin

    Action for M.E.'s AGM and Conference 2018

    Exactly this. They think that collaborating with reality denial is somehow linked to a greater good.
  12. Alvin

    Measuring Artificial Sweeteners Toxicity Using a Bioluminescent Bacterial Panel, 2018, Harpaz et al

    I didn't know its already been slammed having not heard of it till this thread but as soon as i read it i thought how can such disparate molecules all cause the same thing. Gut bacteria are not homogeneous. Its like those who believe natural is good and artificial is bad, thats simplistic stupidity.
  13. Alvin

    Immunoglobulin for chronic fatigue syndrome (CFS/ME): systematic reference list

    Dear god, withhold treatment and tell people their illness doesn't exist while they keep deteriorating Who is protecting these people from a medical ethics hearing?
  14. Alvin

    OMF: Meet the team at the ME/CFS Collaborative Research Center at Harvard, funded by OMF

    Dr Davis knows how to pick good researchers.
  15. Alvin

    Immunosignature Analysis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) (2018) Fluge et al.

    Does this mean that 256 tests need to be done to differentiate ME from controls or one molecule that has 256 parts in it?
  16. Alvin

    OMF ME/CFS Working Group Meeting - September 26 - 28, 2018

    Your welcome, here is a direct link http s://livestream(dot)com/accounts/1973198/ME-CFS-2018
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