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Technically 100.288% :nerd:

I don't know who that is but perhaps 10K is whats in the shopping bag in David Tuller's latest article? http://www.virology.ws/2018/04/24/trial-by-error-the-shopping-bag-study-and-new-york-states-revamped-website/

This wasn't the one that approached significance?

Aye carumba, please tell me thats not a typo or software glitch (since it does not say a name or anonymous).

I love the hard hitting bluntness of David's articles, these paragraphs stood out in that regard

Fair enough, but its very little very late. I assume when we speak of CBT/GET its the deny you have an illness version.

Their statement is basically trying to play both sides. They seem to realize that blanket support for GET/CBT is incorrect but they don't want to disavow it, they still think it has merit (or are afraid to denounce it). For an organization that claims to represents patients they are doing the...

Indeed, its the only plausible explanation :emoji_laughing:

Interesting. I suspect when they decided to do the PACE trial they really believed in what they were peddling, the numbers started catching up to them so they had to fudge their way to success. Once they realized they could not support their reality denial they had to scramble to save their...

Most trials are short term, few look for long term effects and most drugs never get tested for long term effects. That said i think there was a followup (or was there supposed to be) who knows what happened there

He is grasping for straws, its as simple as that.

Very nice :)

Indeed, though we are coming down to the wire soon

Now he is trolling (as if he wasn't before) My answer to that would be yes ME patients can have families, caregivers and sometimes even friends who care about them

MEmillitant is very good, an S4ME member?

Unfortunately there are many diseases that are actually diagnosed by symptoms and have no objective test such as Parkinsons, Alzheimers, Narcolepsy, Depression (as mentioned) and so forth. So it comes down to is it a uniform disease mechanism and how well proven are the diagnosis criteria

No worries, just glad to see your hard hitting articles in print :)

I've had similar thoughts, only time will tell.

Well then this trial is a report on how well you can convince someone to say what you want them to say and has nothing to do with ME/CFS at all. Then its used to lock patients up and give them treatment that makes their condition worse or blamed for failure to recover or as the basis to deny...

I will not unfortunately, and i don't have the knowledge of the NIH money constraints or procedures, though i hope someone reading this does and can ask excellent questions Are you able to attend and ask the questions i have posted?